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  • May 4, 2020
Make the Most out of Your Instagram Bio and finally make your individual images clickable, no matter how many followers you have! Click to read more.

Improve Your Instagram Presence with 1 Simple Tool!

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  • November 25, 2019

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  • thejennagreen

    Jenna 🧡MS Advocate
    An assortment of fun pictures from my first few we An assortment of fun pictures from my first few weeks here temporarily living in Raleigh, North Carolina after being a life long Massachusetts resident. ➡️Important note: not pictured = lots of time resting, a little bit of cursing and crying, lots of stretching and pt, and did I mention resting?! This is #LifeWithMS after #divorce exploring and living in a brand new city while still figuring out how to survive in the world as an #ImmuneCompromised human who is way out of their element, because why the hell not?! 🤣🙌 Do you all want to see more about Raleigh and my observations about the area??? From the perspective of a Northerner who will probably never ever get used to being called ma’am and is still perplexed to see street signs on every road… cause we don’t have those at home 😂🤷🏻‍♀️ #Masshole #SouthernTransplant #RaleighNC #Spoonie #ChronicIllness #InvisibleIllness #InvisibleDisability #Raleigh #NewAdventures #SelfGrowthJourney #ChronicIllnessCommunity
    Stop for a second. Breathe. Let go of the weight o Stop for a second. Breathe. Let go of the weight of expectations from others and remember that you ARE enough. You are amazing. You’re a 10/10. Keep going, we are stronger together ❤️🙌 #MentalHealthMatters #SpoonieSupport #ChronicIllnessCommunity #MSwarrior #ThisisMs #MondayMotivations #WeRiseTogether #Empaths #selfgrowthjourney #personalgrowthjourney #mindsetrest #postdivorce #chronicallyill #butyoudontlooksick
    Last month was very stressful for me , and I know Last month was very stressful for me , and I know that stress can be a big trigger for MS flare ups. I am super grateful to have avoided a new flare on top of everything else I’ve had going on! Sticking to the habits for quality sleep that twill_ms (formerly Kopa) recently shared on their free app was a great help, I hadn’t realized how much liquid I was consuming close to bedtime and how much cutting back on water two hours before bed helped me to stay asleep! #ad The Twill Care app is full of tons of helpful articles from experts on Multiple Sclerosis and overall well being, and it will now read the articles out loud if that’s easier for you! Plus, the guided meditations, such as the one that focuses on breath and the full body scan, really helped me to reduce my emotional stress during my turbulent month. I was able to take a quick break to focus on my health, even while I was on the airplane, thanks to the app and my headphones! Of course, knowing that I had the support of the wonderful MS community was also very comforting. I hope you’ll download the twill_ms app (formerly Kopa) and join us today. Don’t forget, it’s free to sign up and download via the link in my bio.
    Are you giving yourself permission to rest? You Are you giving yourself permission to rest? You all know how I struggle with this… because my chronic illness wants me to do a lot less then my personality wants to 😂🤷🏻‍♀️ I found this reminder from rmdrk helpful. Give yourself permission to rest fellow spoonie warriors. There are brighter days ahead ❤️🙌 The quote on the video of the sunset reads: give yourself permission to rest. we all know how crazy the world is. we all know how stressful things can get. how the anxiety piles up. one thing after another. we all know how hard it can be. we’ve all been there. so please. take a little time on yourself and breathe. we could all use a break every now and then. we could all use a little time on ourselves to do the things we truly enjoy. to do the little things that make us smile. give yourself the permission you need do to these things from time to time. it’ll make living in this cold feel a little warmer. and it’ll bring out the sun on days full of rain. ☀️ -r. m. drake
    Quick reminder, your worth is NOT defined by your Quick reminder, your worth is NOT defined by your productivity. ✔️ So if you’re finishing up your week and you’re feeling disappointed by how much you’ve accomplished, know that you’re not alone and know that you are a valuable human being. I find that I’m still needing extra rest and recovery time from unexpectedly losing my grandmother and having a fire across the country before I moved last month. And despite the fact that I want to have done more by now (work and personally) I have to listen to my body and put my health first. Even if it can be annoying 🙄😂 am I right?!? Seriously, your productivity doesn’t dictate your worth, and I hope you remember how amazing you are ❤️❤️❤️ #ChronicIllnessLife #DisabilityAdvocate #WordsofWisdom #QuickReminder #YouareValuable #Spoonie #SpoonieLife #Invisibleillness #LifeWithPain #ThisIsMS
    Often times my chronic pain and chronic illness DO Often times my chronic pain and chronic illness DO stop me. Saying that you can do anything that you put your mind to is ableist and toxic positivity. Plus, it perpetuates unrealistic expectations, guilt, and the systems designed to keep cis hetero healthy white men in power as it marginalizes other BIPOC and other communities. Growing up, I never thought about it as anything other than “motivation” or “inspiration” when I would say things like that. Now that I know what I’ve said in the past is wrong, I am comfortable admitting that my perspective and understanding has changed. As we discussed today in #CYPCON the first step is forgiving yourself for past mistakes so we can heal forward ❤️🙌 myishathill ckyourprivilege What other sayings did you previously believe/say that you now see as harmful? 👀 #CheckYourPrivilege #ThisisMs #LifeWithPain #DisabilityAdvocate #ToxicPositivity #KnowBetterDoBetter #Unlearning #ChronicIllnessLife #ChronicPainLife
    Thank you berniceaking for the reminder that #Vot Thank you berniceaking for the reminder that #Voting is not all we should do, but it IS a critical part. Voting for sustainable change must be in tandem with thoughtful leadership and community engagement. But voting matters. Register to #vote today: rockthevote.org ✔️🇺🇸 ・・・ #nationalvoterregistrationday #MSactivist #Advocacy #DisabilityAdvocate
    ✨Keep on being you Keep on doing those beautiful ✨Keep on being you Keep on doing those beautiful Impactful Honest Things YOU DO. In this ever moving world, We need more people LIKE YOU✨ Art and quote on a card by morganharpernichols Thank you for all that you do, yes you, you inspire me daily to keep going and keep fighting ❤️ #TuesdayThoughts #MorganHarperNichols #EncouragementQuotes #SpoonieSupport #Advocacy #WordsofEncouragement #ChronicIllnessSupport
    When you live in chronic fluctuating pain and hav When you live in chronic fluctuating pain and have multiple “baseline” pain days in a row and you have to wonder… WTF IS GOING ON?! I wish I could enjoy these baseline/tolerable (for me) pain level days without wondering when they’ll end and how I’ll end up paying for them….but that’s my reality in #LifeWithPain Living in chronic pain and dealing with chronic illness(es) has me constantly estimating what I may or may not be able to do, how I may feel, etc. Of course, you know that doesn’t mean it’s ever actually predictable 😂😂😂 I do my best to stay in the present moment, but I’d love to know, how do you enjoy manageable pain days without worrying too much about the next high pain day?? #ThisisMs #ButYouDontLookSick #PainAwarenessMonth #ChronicPainAwareness #Invisibleillness #InvisibleDisability #Spoonielife #DisabilityAdvocate #Dystonia #ChronicPainLife
    We always see the beauty and uniqueness of others… But we often ignore how special and amazing we ARE 🦋 Especially when we see nonsense in the media (ahem daily.mail.uk) about faking our invisible illnesses or we fall into the comparison trap on social media 🤦🏻‍♀️🤷🏻‍♀️ Personally, I needed this reminder, and maybe you did too?! ❤️ #YouAreAmazing #Spoonie #ChronicIllness
    I’d love to know what other tips you’d add to I’d love to know what other tips you’d add to help someone meeting with a new potential doctor or specialist for their chronic illness?! I met with a new neurologist here in North Carolina yesterday so I put together my top three tips for interview a NEW doctor to be on your team (plus, you’re the patient and you are IN CHARGE!): 1- Use an app like otter.ai or abridgehq (free) to record your convo so you don’t have to worry about taking notes and can refer back to the appt info. Be sure to ask them if it’s ok (it should be! 2- Come prepared with any medical history info/meds/allergies for their forms and a list of questions in order of priority so you know you will have time for the most important question(s). 3- Ask the doctor how they prefer to communicate with patients in between visits (personally I prefer the email/portal option) and how often they share medical research/updates with patients in general (ex: if a new med is FDA approved for your condition). Communication is a key part to any healthy relationship and that includes the one you have with your dr 😉 Ps. My Not Your Vag, Not Your Business 🖕🏻 tee is from the fabulous minessa.konecky #HealthCareMatters #ThisisMS #MultipleSclerosis #ChronicIllnessTips #ChronicIllnessLife #ButYouDontLookSick #DisabilityAdvocate #MyBodyMyChoice #Advocacy #Spoonielife
    The last two years since I officially separated de The last two years since I officially separated dem my now ex-husband of nearly a decade have been a rollercoaster of emotions…full of many moments of fear, grief, joy and gratitude. I’ve done a lot of healing (emotionally and physically) and yet I’m still processing it all in many ways. But I don’t have any regrets… I wish I could hug that girl from two years ago, newly single and facing the future with an unpredictable chronic illness and show her my new apartment her in Raleigh. It’s been hard AF, but life is short and as the sign that hung at my late Gram’s house says LIFE IS AN ADVENTURE. So I’m here for it. ✈️ Yes, my multiple sclerosis effects every aspect of my life, but in some ways it makes me even more determined to enjoy the good moments and make the most of it all. Cheers to facing our fears, bending but not breaking, and moving forward with hope ❤️🙌 #ThisIsMS #DivorcedLife #LifeIsAnAdventure #HelloRaleigh #MovingSouth #RaleighAdventures #ChronicIllness #ButYouDontLookSick #FacingYourFears #SelfGrowthJourney #HealingJourney #GriefandGratitude
    This is your sign and reminder that you’re doing This is your sign and reminder that you’re doing so much better than you give yourself credit for. Celebrate each success, even the small ones. Be patient, keep going and trust yourself. I know I needed to hear this, so I thought you might too. Save it or share with a friend who may need to remember how awesome they are too ❤️
    And a special extra good morning to those people m And a special extra good morning to those people masking indoors even if they or a member of their immediate family isn’t high risk or immune compromised, because we need more people who give a damn like you do. 😷 Thanks to everyone who continues being a decent human, wearing a mask, testing as necessary, getting 💉 if/when possible, washing your hands and giving people space. I hope you have a great day. ❤️ Cheers My shirt reads: Always give a damn, never give a fuck. My fav pink coffee mug is from erin.claiming_disability_llc and reads: Pay disabled content creators
    Honored to be presenting at the first Rare Autoimm Honored to be presenting at the first Rare Autoimmune Emerging Leaders Workshop this December! Apply to join us now at the link in my bio 🎉 #Repost patientauthentic with use.repost ・・・ I am thrilled to announce that this December, Patient Authentic will host the inaugural Rare Autoimmune Emerging Leaders Workshop! This unique experience will bring up-and-coming leaders in the rare autoimmune community together to educate, empower, and inspire in an unforgettable workshop experience. What inspired this event? Millions of Americans live with autoimmune diseases. While awareness and advocacy efforts have increased dramatically over the past few decades for common conditions like Crohn's, Rheumatoid Arthritis, and Psoriasis, some of the folks living rare autoimmune conditions may feel like they have been left behind... ​ We're here to change that. ​ This event will bring together rare autoimmune patients to train them in the power of storytelling, strategies for community moderation and leadership, how to start a non-profit or initiative, how to advocate on Capitol Hill and beyond. Applications open through September 16. Apply now! #autoimmunedisease #autoimmunelife #raredisease #patientadvocate #myastheniagravis #thyroideyedisease #bechetsdisease #waiha #MCTD #spoonie #dermatomyositis #scleroderma #ashersonssyndrome #NMO #neuromyelitisoptica #ITP #igg4
    Just me?!? I know I’m a bit dramatic 👑… B Just me?!? I know I’m a bit dramatic 👑… But every day the news in our country gets more and more alarming, and we’re all supposed to continue as if we don’t live in a pseudo democratic patriarchal supremacist dumpster fire?! 🔥🔥 How are you coping?
    Anybody else a recovering people pleaser?! It fee Anybody else a recovering people pleaser?! It feels kinda weird to be focusing on taking care of my own body, but I know it’s for the best. And it’s okay if we feel kinda “weird”, off, or generally icky some days. You’re not alone ❤️🤝 #MentalHealthMatters #PuttingMyselfFirst #ChronicIllnessLife #SelfCareIsCritical #EverybodyFeelsKindaWeirdSomedays #RecoveringPeoplePleaser #Spoonie
    Say chronic illness once on the internet and you’re doomed to a life of strange and scam DM’s promising to cure you, am I right?! None of us have the energy for these shenanigans 🤦🏻‍♀️🚫 (I am still in full rest and recovery mode and I don’t even have the energy to record a new video. But, thanks to the magic of the internet, I can schedule posts and create content when I’m feeling up to it. Also, I love saying shenanigans 😂) #ChronicIllnessLife #ThisisMS #MultipleSclerosis #LifeWithPain #SpoonieLife #ChronicFatigue #RestAndRecovery #InternetCreeps
    Anytime I try to do too many things… my multiple Anytime I try to do too many things… my multiple sclerosis rebels and tells me I can’t do anymore and I absolutely need a “no things” day or 5. 😴 Anybody else?! #TheStruggleIsReal #ChronicFatigue #ThisisMs #LifeWithPain #MultipleSclerosis #ChronicIllnessLife #SpoonieLife
    Well, it’s been a hell of a week (or two?). I Well, it’s been a hell of a week (or two?). I managed to survive ✔️Botox injections for my Dystonia ✔️Finished packing up (sorta/mostly) my apt in Mass. ✔️Flying to California to attend my Gram’s funeral and mourn with my family💔 ✔️So far I’m grateful to have tested negative and hope to stay that way 🤞🏼 I did mask at all times indoors and I was lucky enough to get a dose of Evosheld before I left (antibodies shot for moderate to severely immune compromised people who don’t respond well to vaccines, more on that later). ✔️Flew from CA to Raleigh where I’m renting a fully furnished apt for the fall and winter and I’m very excited to have some new adventures down here! ✔️Super grateful for my friend Jen of heartofpeacewellness who moved my car and all of my things to Raleigh while I spent time with my family and celebrated my Gram’s life. ✔️Paying all the MS taxes for overdoing it the past few weeks but I can’t wait to catch up and show you all my new apt and explore my new city. Stay tuned. It’s been one of the hardest weeks (months?) of my life, but I am doing my best to take care of myself throughout it. So, What’s new? I feel like I missed a lot this last month, but I’d like to be human-ish again 😂🤷🏻‍♀️ #ThisIsMS #GriefAndGratitude #Dystonia #MovingIn #HelloSeptember #Raleigh #NorthernerDownSouth #SpoonieCommunity
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