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  • May 4, 2020
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  • November 25, 2019

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  • thejennagreen

    Jenna 🧡MS Advocate
    ➡️ I have privilege. I’ve said it before, b ➡️ I have privilege. I’ve said it before, but I haven’t said it enough, because it’s CRITICAL to remember that despite the challenges we face as disabled people, being a white cis gender heterosexual woman with a (mostly) #InvisibleDisability still provides me with a lot of privilege. This doesn’t mean my chronic illness is cured or that my life is easy, but it IS easier because of the above factors. Thank you @rhi_is_sick @dragonspirals & @alilbitofaith for creating this important space: @amplifybipocdisabledvoices ❤️ #Repost @rhi_is_sick via @make_repost ・・・ I want you to take a minute and consider how many BIPOC chronically ill/ disabled people you follow. I'm going to go ahead and guess that it isn't that many. We are such an underrepresented group in all aspects of life, so it doesn't come as a surprise that this is the case in the chronic illness/ disabled community. This post is full of BIPOC chronically ill/ disabled people who are doing amazing things; from sharing their stories to raising awareness for their conditions. Something I personally try to speak about, as do some of these people tagged in this post, is the impact of being a person of colour, being South Asian (or BIPOC). This can have such an impact on the experience of being chronically ill/ disabled. This can vary from how family/ friends treat the sick individual to how doctors and nurses diagnose and treat them. It is well known that BIPOC females, especially black females, are often dismissed massively when it comes to pain. The purpose of this post and this little project I've been working on is to #amplifybipocdisabled voices. Our stories, our experiences, thoughts and feelings NEED to be heard. We need to stop being underrepresented. So please, take the time today to follow these wonderful individuals and listen to their stories. Help to amplify their voices and ultimately, I've also launched a new page! @amplifybipocdisabledvoices . A safe space for us to share our stories, meet others and ultimately, amplify out voices in this incredibly white-washed community. I really hope this helps to amplify our voices, our stories and our experiences!
    Who else feels like a new person after a fresh hai Who else feels like a new person after a fresh hair cut?! 💇‍♀️ Changing my hair has always been therapeutic and fun for me, and now keeping it on the shorter side makes my life a heck of a lot easier too. What have you done lately to help yourself feel good?! ❤️
    What rules do you try to live by? While I didn’ What rules do you try to live by? While I didn’t always agree with him, General Colin Powell was an amazing leader and diplomat. He was also one the countless immune compromised human to lose their life because of this terrible pandemic (he was a cancer survivor as well as had Parkinson’s disease). While I would like to hope that his death will be a wake up call for people to protect themselves and others 😷💉 as he said, “you can’t make someone else’s choices”. I will make my own choices though to keep myself safe and do my best to hold on to perpetual optimism ❤️ #ColinPowell
    What do you want your future to look like? I’ve What do you want your future to look like? I’ve been thinking about this a lot lately, thanks to some thoughtful exercises from the @indecollective, which I’m enrolled in this fall to help me build my consulting business. #NDEAM Being recently divorced and newly single for the first time since I was barely an adult, and living with an unpredictable #InvisibleDisability, I’ve had to do some serious work to even begin to describe what it is I truly want from my life. 🔮 If living with Multiple Sclerosis has taught me anything, it’s to prioritize the things/people/feelings you love most in life (and not to forget to include yourself at the top of that list). I don’t know what the future holds, but I do know that even if it’s nothing like I pictured originally, it can and will still be beautiful 🌅 ⁣ “Be mindful of what you want, instead of what you don’t want. Constantly focusing on the problem will not manifest the solution.” -Anthon St. Maarten
    MS is a greedy disease.⁣ ⁣ It will try to take MS is a greedy disease.⁣ ⁣ It will try to take a lot from you. For me, what's scarier then the physical abilities it may try to take, is that it tries to steal my joy. My hope. ✨ My inner fire. 🔥The self love that I've worked so hard to cultivate.⁣ ⁣ What MS doesn't realize is that I refuse to let it turn 𝘮𝘺 𝘩𝘦𝘢𝘳𝘵 into something ugly. I will survive, I will be better because of these challenges, and it will 𝘴𝘵𝘪𝘭𝘭 be beautiful. ⁣ ⁣ 🧡Who's with me?!⁣ [img description: Jenna, white woman with shoulder length hair, stands in front of the sunset on a lake and looks into the distance while wearing a shirt from @thebluegarnetboutique with pink floral sleeves]
    I have no idea what my life would be like without I have no idea what my life would be like without all of the amazing people I’ve met because of my MS 🤔 How has connecting with others that have MS and finding reliable research improved your life? Have you joined the free @mymultiplesclerosisteam on the @myhealthteams platform?! #ad Whether you’re looking for an additional way to connect with your fellow MS advocates and warriors, or you’re sick of unreliable social communication when you need support from the MS community, I’ve found there’s no such thing as too much community when living with chronic illness. ❤️ Plus, it’s a great site full of inspiring stories and relevant articles about trending topics and science backed research. 🧠 You can add me to your “team”, share on a topic that resonates with you, read about new and important research, and more, plus it’s all free 🙌🏻 🧡Join my team on myMSteam (link in bio)
    Isn’t it interesting how one moment from a year Isn’t it interesting how one moment from a year can feel like it happened so much longer ago than it actually did and yet another can feel like it was yesterday and it has been an entire year? #throwbackpics It’s been one year since my last MS flare up where I needed three days of IV steroids… but I think especially with all of the stress in my personal life at the time, it feels much longer ago. 🕰 And yet the same day, I came home to snuggles with my Dixie girl, and while she passed away four months ago, those moments feel like yesterday. ❤️🐶 “Whether it’s the best of times or the worst of times, it’s the only time we’ve got.” – Art Buchwald Hope you enjoy your time today, friend ❤️
    What are your go-to strategies for living well wit What are your go-to strategies for living well with depression, anxiety, or other health issues that make you feel unworthy? I’d love to hear them ❤️ I share openly about my chronic illness, Multiple Sclerosis, and my struggles with chronic pain, fatigue, and brain fog and mental health. 🧠My anxiety and depression have convinced me many times that I wasn’t deserving of reaching my dreams, but I know now that isn’t true. Personally, I don’t think that mental health, including depression and anxiety (two conditions I have), are talked about enough in today’s society. 𝗦𝗮𝗱𝗹𝘆, 𝘁𝗵𝗲𝗿𝗲 𝗶𝘀 𝘀𝘁𝗶𝗹𝗹 𝗮 𝘀𝘁𝗶𝗴𝗺𝗮 𝗮𝗴𝗮𝗶𝗻𝘀𝘁 𝗺𝗲𝗻𝘁𝗮𝗹 𝗵𝗲𝗮𝗹𝘁𝗵 𝗰𝗼𝗻𝗱𝗶𝘁𝗶𝗼𝗻𝘀. I work on my mental health and mindset daily, but that doesn't mean that I'm always feeling happy or optimistic. Life is fucking hard, especially these past 18 months💐 I find that surrounding myself with things and affirmations that are positive help with my mental attitude too. You are worthy of all your dreams too 🌈 #repost @mirrorsreflectyou (img description: brown framed oval mirror on a light grey wall with text on it that reads “stop self sabotaging just because you’ve wrongfully convinced yourself you aren’t deserving of reaching your dreams”)
    What are you looking forward to in October?! 🎃 What are you looking forward to in October?! 🎃 Besides the requisite fall weather activists I love like apple picking and sipping pumpkin spice lattes, I am super excited for next week’s inaugural Autoimmune Summit! 🎉 And I am honored to share that I will be speaking on the Neurology Patient Panel at the #AutoimmuneSummit October 16. 🙌🏻 Join us virtually for this FREE Event hosted by @autoimmune_diseases along with my outstanding co-panelists including moderator & MS advocate @damianwashington, Sumaira Ahmed of the @thesumairafoundation and rare disease advocate @whitneyangellcarter. We’ll be discussing the importance of connection and self-advocacy as an autoimmune patient, plus sharing our strategies for condition management and more. In addition to our panel, there will be 23 educational and empowering sessions and over 50 autoimmune experts including physicians, nurses, policy experts and of course, patient advocates (who will make up the majority of speakers). I hope you’ll join us, you can register at the link in my bio ❤️
    “Life does not come with instructions on how to “Life does not come with instructions on how to live, but it does come with trees, sunsets, smiles and laughter, so enjoy your day” - Debby Shapiro Life definitely hasn’t had enough smiles lately, but this sunset and Swan sighting absolutely helped. ☀️🦢 What made you smile today? [img description: 1: Jenna, a white woman wearing jeans, and a tan top with pink floral sleeves from @thebluegarnetboutique is smiling and standing on a dock white the sun sets over the lake behind her. 2. A swan is swimming on the lake as the sun sets ]
    When you live with an unpredictable chronic illnes When you live with an unpredictable chronic illness, you never know if you’ll be able to attend an event, no matter how much you’d like to. #ad Thankfully, virtual access to public hearings, get togethers, and classes are making the world more accessible for all of us! Having a set up that allows me to sit or stand and a @logitech #C922 Pro HD Stream #webcam so I can stream live with the most crystal clear quality (even if I need to stream from my bedroom with lowlight since it has provided HD autofocus) has made all of my virtual events so much easier and more professional too. And yes, I spoke with a senators healthcare policy team virtually all business on top and leggings on the bottom! Whether I’m advocating to help change public policy to improve the lives of people in our community or I’m connecting with other advocates and friends, I know I need to make virtual discussions as easy as possible for myself. I’m grateful to have the space and the tools to do that and stay connected with all of you! Available at: https://logi.link/9yq6u #C920s #thisisms #msadvocate #advocacy #disabilityadvocate #webcams #workfromhome #workfromhometools #accessibletech #bethechange #mswarrior
    #FlashbackFriday to when I got to see @jennifer.mu #FlashbackFriday to when I got to see @jennifer.muthig aka the birthday girl in person 🎉🎉🎉 Do you ever meet someone and immediately know they were meant to be apart of your life? Maybe it’s our mutual love of sarcasm, memes, or dogs, but I instantly felt grateful to know her😂🤷🏻‍♀️ Whenever I feel like changing public policy is a an unsurmountable task, I remember that there are people like Jen and my heart bursts with gratitude. Jen, who despite not actually living with MS, works daily to advocate for our needs and the needs others with disabilities. She’s one of the many unsung heroes of the MS society and I couldn’t be prouder to call her my friend ❤️🥂 #happybirthdaytoyou
    Life with chronic illness is a rollercoaster, isn’t it?! 🎢 Some days you’re doing well and managing fine, and sometimes, despite all your best efforts, your body has different plans than you do. 🤷🏻‍♀️🤦🏻‍♀️ I had to reschedule my live on the 17th to talk about advocacy with Rachel of @cycadianhealth because a tiny little skin irritation turned into a full blown skin abscess that needed to be drained and I am now on antibiotics. 🩹(being immune compromised is so rude sometimes 🙄). Could I have pushed through and done it, possibly. But if I’ve learned anything about advocacy, it’s that our own health MUST come first or we won’t be able to help ourselves or others. 🙌🏻 Learn more about what our discussion will be tomorrow below and I hope you can tune in to join us ❤️❤️❤️ #Repost @cycadianhealth with @make_repost ・・・ We break from the scheduled program because health comes first. The live originally scheduled for today is postponed because chronic illness is freaking hard, unfair and disrupts the lives of those diagnosed (and those who are not yet diagnosed but have a chronic illness!). Jenna @thejennagreen will join me instead on Monday the 20th at 1pm PT/ 4pm ET to talk about #PatientAdvocacy. Good vibes, lots of love, and all the resources to Jenna today as she manages her health and health care! Young professionals with chronic illness and cancer are forced to rethink and reinvent how they work. Let’s expand disability. Let’s make it the norm to prioritize health. Let’s make sure people have access to the support, tools, and resources they need to thrive despite cancer and chronic illness and a medical system incentivized by profit. This is patient advocacy in all its forms folks – long story short - people first, patients at the center of care, communities built to support everyone inclusively. When we get together we’ll talk about the various types of patient and health advocacy. We’ll cover how #ChronicIllness and #cancer can impact young people and how finding a #ProfessionalHealthAdvocate or #HealthcareAdvocate can benefit anyone. We will talk about the barriers to finding support.
    Look, it’s a lot to put on a decorative gourd, b Look, it’s a lot to put on a decorative gourd, but life is heavy and a new velvet pumpkin is gonna bring me joy… plus I can’t help myself 😂🤷🏻‍♀️🎃 Who else is Fall obsessed?! 🍂 And yes, I want all the pumpkin spice coffee too ☕️ #Repost @letterfolk with @make_repost [img description: black letterboard with with letters that reads ME: I’m a responsible, conscientious consumer. ME IN FALL: if it’s pumpkin, I’m buying it]
    I have more appreciation for the ability to move m I have more appreciation for the ability to move my body now then ever before. 🙌🏻 #bandegiftedme one month of unlimited access to their virtual classes and it’s been amazing! Bande offers a variety of live and on-demand classes for all levels. Since their classes are online you can take them anywhere and for an entrepreneur who’s abilities differ daily like me, this is so convenient. It’s been SO nice to have the feeling of a group class and community with the encouragement from a live instructor without having to leave home! 💪🏻 So far I’ve tried Yoga, Barre, and Stretch & Recover classes and enjoyed them all. Their app os super easy to use and you can see how extensive their live classes are on my quick video. I have also been doing the on-demand classes which are super convenient. 🧘‍♀️ Want to join in on the fun, community and movement? Learn more about @webandetogether here: https://www.octoly.com/c/hda7i/r/hba9y ✨ And Use my promo code: BANDESUMMER21: Enter code at check out to receive your first bande class for free! 🎉 How are you using movement as part of your health and self care routine? 🧘‍♀️ #octolyfamily #webandetogether #bandexoctoly #fitness #virtualfitness #virtual #exercise #healthylifestyle #ondamand #thisisms #mswarrior #invisibleillness #chronicillnesscommunity
    Sometimes in life you meet the wrong people, but o Sometimes in life you meet the wrong people, but once in a while, the right people come into your life… ✨They are the people that celebrate you on your brightest days, but also comfort you on your darkest nights. They are the light bringers and the dream boosters. They elevate you, they challenge you and they believe in you. They remind you that every night has a day and every scar can be healed. You may not see each other as often as you’d like, but when you catch up, it lights the whole sky. These people are more than just your friends — they are your squad. Hold on to them, protect them and love them — you’re better together✨
    As so many of you have said, I will never forget t As so many of you have said, I will never forget the moment the world changed. In many ways, it shaped my own view of the world as I was a high school senior. Today, and always, I remember and hold space for all of those affected 20 years ago. I still work for and hold on to hope for a much better world for my family, my friends, my fellow humans. ❤️
    Sometimes the most loving thing you can do for you Sometimes the most loving thing you can do for yourself (and often for the other person too) is to let them go. Do you agree? I’m not sure I always did, but after separating from my husband last year, I would say undoubtedly yes. I’ve learned to love myself more this year in a way I didn’t even realize was possible. It’s hard to describe, but while I still have love for him, I know it’s the best for both of us. There’s a lot of stigma surrounding divorce, and a lot of fear, especially if you’re a disabled or chronically ill person. I haven’t discussed it much publicly, but I do think I’ve learned some valuable lessons. And if you’re all interested I will share them? Regardless, remember that YOU are worthy of love and respect ❤️ #Repost from @mirrorsreflectyou [img description: full length gold mirror reads “it’s okay to love someone and still let them go if it means you can finally love yourself”]
    Are you feeling overwhelmed?! You’re definitely Are you feeling overwhelmed?! You’re definitely not alone. 🌍 Whether you identify as an activist trying to change the world or as an empathic human trying to survive, the country, our lives, our world, well… it’s a fuckin lot to say the least. ☄️ The @highestselfpodcast from last week was exactly what I needed to remember today. @iamsahararose said “So, if you’re feeling overwhelmed, know that this is a normal response. What you can do is focus on ONE issue [which of course intersects with multiple issues ex: disability rights and abortion, BIPOC and LGBTQ+ rights] become the expert in it, become the solution for it, it can be global, it can be local. 🙌🏻 And yes, you can remain aware of what’s happening around the world, but if it’s getting to a point that it’s crippling you, that it’s preventing you from being the mother that you want to be, from living your purpose, from taking action on the very things that you were meant to share, then I invite you to just take a step back. 🧘‍♀️ Maybe delete whatever Apps that you keep going on or vow to yourself to not go back to those news websites and give yourself a break because you staying up to date on the latest of the numbers and the stats and the wars, isn’t helping. It’s not bringing the numbers down, it’s not ending any war, it’s not ending any genocide. In fact, it’s just making everyone weaker.” I took a step back today, spent less time on my phone, and already feel a bit less overwhelmed. ❤️ [jenna a white woman wearing pink lipstick, gold wear rings and a black top with short wavy hair making a “oh wtf” face and holding a black mug that reads Activist. Behind her a sign with a rainbow that reads everyone is welcome here]
    Does your dog or pet make your life better? Is Does your dog or pet make your life better? Is it harder to be a dog parent while living with chronic illness, undoubtedly YES. But is it worth it????? For me, the answer has always been yes. And now, since it’s been nearly 3 months since my best friend, Dixie, passed away, I know what living without a dog in my life is like. And YES I still believe that being a dog parent is the best thing for me, despite my MS. No, this isn’t a “I got another dog announcement”, these two pups, Buddy and Holly, who are staying with me this week are Dixie’s “cousins” and they’ve been frequent guests at my house over the years. 🐶🐶 Today is the first time they’re visiting since Dixie died, but as strange and sad as it is, it’s also extremely comforting and wonderful. 💔❤️ I’m sure when the perfect pup for me is available for adoption, my angel Dixie will help me find them 🐾
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