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  • thejennagreen

    Jenna (she/her) 🧡MS Advocate
    Friends, we talk about the physical and mental to Friends, we talk about the physical and mental  tolls of #chronicillness and #disability often... but what about the sheer emotional exhaustion that we have to deal with?!⁣
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Despite being a “pro patient” with tons of procedures over the past five + years ... walking into my endoscopy today, I had to push past my FLIGHT instinct (hello, medical ptsd). ⁣
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I tried to thank my body for alerting me to the danger, because I’m trying to get better at listening to my own intuition (after years of ignoring it and doing things that scare me like needles, shots, surgeries etc). 💉I figured at least acknowledging the fear, instead of ignoring it, might help. ⁣
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But seriously, this shit is exhausting.⁣
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Even the idea of calling to schedule more procedures and tests (I’m also dealing with a back pain flare up that I’ve been putting off seeing anyone for) is EXHAUSTING.🤦🏻‍♀️⁣
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Yes, I wore my “Advocate like a Warrior” sweatshirt but I don’t feel like a warrior lately. I feel like the toll of being an illness advocate trying to balance safety and fighting for their own care during a global pandemic hasn’t been discussed enough. ⁣😷
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And of course, I know I have a LOT of privilege as a white cis woman with access to health care and insurance. So I can only imagine what my more marginalized disabled friends have to go through. ⁣
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Anyone else feeling this way? ⁣
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But I’ll keep fighting, for myself and others, because I have to. Because if I don’t, I’m giving up that teeny tiny little sliver of hope I have that one day things will be easier for all of us ❤⁣
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(Sweatshirt link in bio ❤) ⁣
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#thisisms #advocate #mswarrior #multiplesclerosis #chronicillness #disabled #disability #fightforequity #healthcarematters #highrisk #immunecompromised #exhausted #truth  #chronicfatigue #mentalhealthmatters #butyoudontlooksick #invisibleillness #autoimmune #activist
    Mantra of the day: I am striving to be the best ve Mantra of the day: I am striving to be the best version of myself 𝗶𝗻 𝘁𝗵𝗶𝘀 𝗺𝗼𝗺𝗲𝗻𝘁.✨ I won't compare myself to who I was yesterday. ⁣
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I often see quotes about 'the only person you should compare yourself to is the one you were yesterday', but I find that is not very helpful for me in this #ChronicIllnessLife. I imagine it isn't terribly helpful for most people who have unpredictable bodies/lives/abilities? 🤷‍♀️⁣
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With a body that could mop the floor and do yoga yesterday and yet can't pick up the cup I dropped today.... uh that comparison is more detrimental to my mindset than it is helpful. ⁣
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NOTE: Yes, I am 100% always for personal growth, physical growth, and the powers of neuroplasticity etc., but I can still feel determined and recognize my progress without the pressure to be 'better' than yesterday. ⁣
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So for this moment, I'll strive to be the best person I can be, and I won't worry about who I was yesterday or what anyone else is doing. ⁣
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Who's with me?!❤⁣
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#thisisms #mantramonday#mondaymotivation #mantra #words2liveby #chronicillnesswarrior #multiplesclerosisawareness #invisibleillnessawareness #mindsetmatters #mindfulliving #disability #disabilities #advocate #personalgrowth⁣
#affirmation #spoonie #selfgrowth #spoonielife
    Great moments and crappy ones, I am always gratefu Great moments and crappy ones, I am always grateful for this little pup 🐶❤️

She’s still struggling with our new life/location but we are both making progress. She’s got her first telehealth appt (yes, my dog) next week with a special vet behaviorist, which will hopefully help her with her anxiety (and anxious barking 🤦🏻‍♀️).

Has your dog ever suffered from grief and anxiety? 

She’s been cleared of health issues thankfully and she is on meds, but the additional holistic things I’ve been trying having helped enough. I’m hopeful she will be happier and more secure here soon ❤️
    Beautiful words from @daniellelaporte to remind yo Beautiful words from @daniellelaporte to remind you all how much you deserve ❤⁣
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#Repost @daniellelaporte with @make_repost⁣
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Be soft with your self today. This is the ultimate strong medicine. ⁣
❤You deserve❤⁣
: eye contact⁣
: smiles in the morning⁣
: food made with pure intention⁣
: clean drinking water, fresh air⁣
: Hello, Please, Thank you⁣
: time to think about it⁣
: a chance to show them what you’re made of⁣
: a second chance⁣
: an education⁣
: health care, including dental⁣
: multiple orgasms⁣
: weekends and the summer off⁣
: 8 hours of sleep⁣
: play before work⁣
: to change your mind⁣
: to say no⁣
: to say yes⁣
: to have your deepest needs met⁣
: to be seen⁣
: to be loved for what is seen.⁣
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What else would you add to this list?! You are worthy of it all ✨
    #TBT with my very best guy. At 96, Grandpa said p #TBT with my very best guy.

At 96, Grandpa said part of the key to a long life was “stamina, because you’re going to have your ups and your downs” 🎡

Not a revolutionary statement, but one I need to remind myself of often lately, so I hope it helps someone else today too ❤️

Grandpa was also a proud Democrat and feminist and I know he was smiling with us all yesterday.

When I’m not sure how I’m going to get up again, I remember his will to fight, to stand up for equality and all he believed in, and I know I am strong enough to keep trying to live my best life 🙌🏻🙌🏻

❤️Who has helped to inspire you to keep  living your best life?
    Today gave me hope. I cried tears of relief. Tea Today gave me hope.

I cried tears of relief.  Tears of gratitude. Tears of pure joy.

And tears of sadness because today is just one day. It doesn’t dismantle white supremacy, racism, ableism; I could go on and on.

But today, I’m just going to focus on the JOY ❤️✨🙌🏻

#Repost @changecadet with @make_repost
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Breathe y'all! Congratulations President @joebiden and Vice President @kamalaharris! So many feelings and emotions swirling around! There's work to do and all of us have the honor and responsibility of holding both of them accountable! But today...have fun! Be safe. And we'll get back to doing the work tomorrow! #changecadet
    This is my “uh I feel weird posting about my sto This is my “uh I feel weird posting about my stomach issues on the internet but whatever” face 🤣🤷🏻‍♀️

I was scheduled for an endoscopy to check out the swallowing issues I have been having in March of 2020. Surprise, it was postponed.

And thanks to our society’s general lack of giving a fuck about anyone else, the pandemic is still awful and I’ve  postponed countless “not essential” appts (like millions of other chronic illness patients that NEED care) ... but I digress. 🙄

So now a year later, I am still having some difficulty swallowing (esp when my fatigue is high) and my stomach/intestines fucking hate me. Yes, that’s the medical term 😂🤷🏻‍♀️

I know many other #mswarriors suffer with constipation or the opposite problem, which is my problem 💩 💩💩so here I am talking about poop issues on the internet.

Anyway, if you’ve ever had an endoscopy and have any tips or want to reassure me that the risk of a flare from the anesthesia they need to use (yeah, I’m a 🦄) is worth answers... please share away!

Ps. This means I’ll be getting my first ever covid test later this week (required before the procedure, as well as quarantining after, which is cool cause that has basically been my life anyway) so stay tuned because I’ll let you guys know what it’s like 🤷🏻‍♀️😬
    White friends, did you know the #MLKDay is the onl White friends, did you know the #MLKDay is the only national holiday dedicated to being of service to others?

I think the very LEAST we can do today is to educate ourselves on MLK’s true legacy, read this article, read “Letters from a Birmingham Jail” and support a Black creator or Black business owner today. ❤️

#Repost thank you  blackandembodied for this series of images with @make_repost
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We will keep speaking truth, and will not let Dr. Martin Luther King Jr’s legacy be white washed. Tell the whole story and not just the narrative that makes you feel warm and cozy inside! This article was written by Kaitlin Byrd for NBC ✊🏽

#nowhitewashingMLK 

#checkyourprivilege #showup #dothework #bethechange #unlearnandrelearn #unlearning #supportblackownedbusinesses #silenceisviolence
    Damn, I LOOK wicked laid back in this picture.⁣ Damn, I LOOK wicked laid back in this picture.⁣
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I mean I was in the moment, but in general.... I am not particularly patient. Ok, not true, because I have patience for people I love, even for random strangers, and I rarely get stressed in traffic lol. ⁣
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But as my therapist pointed out (again) last week... I have very little patience for 𝗺𝘆𝘀𝗲𝗹𝗳.⁣
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I had my most recent MS flare up in October, after having just moved out of my house of 8 years and separated from my husband of nine... while being immune compromised during a pandemic and all that's going on in the world. 😬⁣
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So of course, the flare wasn't a big surprise, but I WANT to be 'back to baseline' already dammit. I want Dixie to be well adjusted to our new life already ( I swear she may be having a harder time then I am, my poor baby 🐶). I rarely get frustrated with her...but my abilities (or lack of focus, pain, bladder control etc.) fuck I find them frustratingly. And yet, I know consciously that have been doing very well all things considered. 🤷‍♀️⁣
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So if patience with yourself isn't a virtue you posses, I want you to know you aren't alone. 🐢 And if you have some tips for developing patience, PLEASE share them with me. ⁣
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I love mindset strategies and I practice improving mine daily, but maybe we can hold each other accountable for giving ourselves grace and patience during times of crisis and trauma? 🧡⁣
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#thisisms #mswarrior #butyoudontlooksick #sicknotugly #griefprocess #divorcejourney #dogmomlife #anxiousdog #patience #lackofpatience #mindsetmatters #personalgrowth #selfgrowth #accountability #grace #chronicillness #invisibleillness #msadvocate ⁣
#disability
    Oh man... this memory. January 2020. In some ways, Oh man... this memory. January 2020. In some ways, I gotta be careful what I wish for 🤦🏻‍♀️ zoom meetings with pajama bottoms ARE the new standard. And after this @bostonbusinesswomen fab pj party I said every party should be in pjs 😂🤷🏻‍♀️

And  as someone who knows first hand how life can change in an instant, my mind is still grappling with how different our world is now vs. one year ago!!!! 

Regardless, I’m super #grateful for fun memories and silly selfies from when I could actually be in the same room with my friends ❤️❤️❤️

And I am learning that it’s ok to grieve these small losses like parties with friends even when there are so many other huge losses to grieve. 

Your feelings are valid. 😘
    Reflecting on the past five years since my Multipl Reflecting on the past five years since my Multiple Sclerosis diagnosis made me realize, I have survived a whole lot of shit. ⁣
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100% of my bad days, to be cliché.⁣
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Days I cried on my kitchen floor for hours. Hospital days. Doctor appts. Emotional and physical pain I thought I'd never live through. Needles, so many freaking needles. ⁣
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And yet here I am 💪⁣
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For the first time (ever?!), I don't have a clear plan for the year ahead. For myself or for my business. I haven't done my vision board yet. Hell, I haven't even taken down the Chrismakkuh decorations. 🎄⁣
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But I'm learning to be okay with that too, because I am damn good at figuring out whatever's thrown at me. ⁣
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Am I the only one that hasn't done a damn thing about the decorations?! I should probably get on that...🤷‍♀️😂⁣
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#mantraband #wordsofwisdom #wordstoliveby #survivor #mswarrior #thisisms #multiplesclerosis #disabled #disability #chronicillness #spoonie #spoonielife #personalgrowth #planner #flashbackfriday #dystonia #msawareness #restiscritical #selfcare
    𝗬𝗲𝘀𝘁𝗲𝗿𝗱𝗮𝘆 𝘄𝗮𝘀 𝗬𝗲𝘀𝘁𝗲𝗿𝗱𝗮𝘆 𝘄𝗮𝘀 𝗺𝘆 5 𝘆𝗲𝗮𝗿 𝗠𝗦 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗶𝘀 𝗮𝗻𝗻𝗶𝘃𝗲𝗿𝘀𝗮𝗿𝘆. ⁣
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I wish I had some wise words or some inspiring shit to say here, but I really don't. 🤷‍♀️😂⁣
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If you're newly diagnosed, I'll tell you my answers to these commonly asked questions (and feel free to ask me more too):⁣
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🧡Yes, Multiple Sclerosis has changed my life drastically in the past five years. It impacts my life every day and in multiple ways. ⁣
 ⁣
🧡No, I never thought my life would look like this pre-diagnosis (or even early into my diagnosis). I've had 5 relapses in five years despite fighting and advocating for myself to be on the 'statistically most effective' disease modifying therapies. Some people have 0. But who can predict the future anyway?! 🔮⁣
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🧡Yes, I've tried all the yoga, diets, eyeroll inducing suggestions too (some I do think help me, some don't). Everyone is different. 🤷‍♀️ MS is a bitch.⁣
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🧡And the one I haven't said publicly yet: No, MS is not the reason I am getting divorced. Did it help my marriage? Hell no, but my husband and I tried our best to make our relationship work for over 9 years and life is far too complicated to blame one 'thing' on it not working out. ⁣
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🧡Yes, the list of things that MS has taken from me is freaking long. But ya know what? The list of things it has GIVEN me is also pretty long. And that is an 𝘢𝘮𝘢𝘻𝘪𝘯𝘨 side effect. ⁣
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MS has connected me with YOU, this amazing community that I am #grateful for beyond words. The friend's I've made #BecauseMS are truly some of the very best people I've ever had the privilege to know🧡 ⁣
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PS:fellow #MSwarrior @KJartlife painted this gorgeous canvas that I will one day hang on my wall lol⁣
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MS has helped me to appreciate the little joys in life. MS has taught me to be my own best #advocate and has made me want to help change the whole damn world 🌏 Gotta have dreams, right? ⁣
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𝗧𝗵𝗲𝗿𝗲 𝗵𝗮𝘃𝗲 𝗯𝗲𝗲𝗻 𝗮 𝗵𝗲𝗹𝗹 𝗼𝗳 𝗮 𝗹𝗼𝘁 𝗼𝗳 𝗯𝗮𝗱 𝗱𝗮𝘆𝘀 𝗶𝗻 𝘁𝗵𝗲 𝗽𝗮𝘀𝘁 𝗳𝗶𝘃𝗲 𝘆𝗲𝗮𝗿𝘀, 𝗯𝘂𝘁 𝗮𝗹𝘀𝗼 𝗮 𝗵𝗲𝗹𝗹 𝗼𝗳 𝗮 𝗹𝗼𝘁 𝗼𝗳 𝗴𝗿𝗲𝗮𝘁 𝗺𝗼𝗺𝗲𝗻𝘁𝘀. 𝗧𝗵𝗼𝘀𝗲 𝗴𝗿𝗲𝗮𝘁 𝗺𝗼𝗺𝗲𝗻𝘁𝘀 𝗴𝗶𝘃𝗲 𝗺𝗲 𝗛𝗢𝗣𝗘 𝗳𝗼𝗿 𝘁𝗵𝗲 𝗳𝘂𝘁𝘂𝗿𝗲 ✨
    The first picture was my visit to the Capitol with The first picture was my visit to the Capitol with the @mssociety on March 4, 2020. The second picture is from one week ago.

If you grew up in white middle class America and learned in history class that Columbus was a guy we celebrated and our country was a generally safe and good place where hard work was rewarded and bad guys went to jail (despite all of the violence and horror in our history) etc you’re probably still dealing with some level of cognitive dissonance after last weeks attack and coup attempt.

I know I am, even though I’ve spent the last five years educating myself on what America is ACTUALLY like. 

Many of us has said “but this is not our country”. Well, the sad truth is that it IS our country, but we WISH it wasn’t. It’s a lot to process, but we simply do not have time to process it all now. 

We need to impeach Trump and hold everyone involved in this terrorist attack accountable before we can even begin to start moving forward toward unity. 

➡️If this isn’t what you want your country to look like then I hope you’ll call, email, tweet, your representatives and urge them to hold everyone accountable for this horrifying and illegal display of white supremacy. 

After that, there will still be a lot of work to do, but I have to hold on to hope that we can one day actually be the country we were led to believe we lived in as kids. 🇺🇸
    My illness is invisible. My pain is invisible. My My illness is invisible.
My pain is invisible.
My depression and anxiety are invisible.
My fatigue is invisible.
My cognitive disfunction is invisible.
My muscle spasms are (mostly) invisible.
Yet...

𝗜 𝗔𝗠 𝗡𝗢𝗧 𝗜𝗡𝗩𝗜𝗦𝗜𝗕𝗟𝗘.

As my fellow advocates @myelinmelanin inspire and remind me that I will NOT apologize for: taking up space, being disabled and proud, speaking up for equality, action, and change, or for making you uncomfortable. Nope, I'm not sorry. 

My disease is invisible, my struggle is invisible. But my strength is not. 𝗜 𝘄𝗶𝗹𝗹 𝗻𝗼𝘁 𝗯𝗲 𝗶𝗻𝘃𝗶𝘀𝗶𝗯𝗹𝗲. 

#thisisms #multiplesclerosis #myelinmelanin #checkyourprivilege #speakup #dothework #chroncipain #multiplesclerosisawareness #butyoudontlooksick #sicknotugly #iamnotinvisible #msaactivist #msadvocate #advocate #spoonie #bethechange #showup #chronicallyill #truth #disabled #disability #disabilityadvocate #disabledandproud
#invisibleillness #chronicillness #makeadifference
    There will be pain either way. The pain of growth There will be pain either way.

The pain of growth, especially in the past five years, has resulted in tears, lost relationships, owning up to my past mistakes, forgiving myself, and much more.

But the pain of growth isn’t filled with the suffering that happens when you’re staying the same. That type of pain, for me, is too much to bear.

Life is about change. 🌱Are you ready to grow with it?

#mantraband #wordstoliveby #wordstoinspire #growthmindset #personalgrowth #selfgrowth #loveandlight #mindsetiseverything #mindfulliving #mindfulnesspractice #chronicillness #spoonie #bethechange #dothework #showup #checkyourprivilege
    If you’re just now waking up to the horror that If you’re just now waking up to the horror that is systemic racism, white supremacy, bias policy, and the history of violence that makes up our country.... hi.

Don’t spend another minute questioning it, because it couldn’t have been more clear that all of these things exist then when our president insighted a coup in our national Capitol building and the police help them inside (and even escort them by hand down the stairs).

Yes, the Capitol building is heavily guarded with tons of check points and armed guards. These photos were taken just 10 months ago right before everything shut down for the pandemic. There is NO possible way the terrorists  didn’t have police assistance yesterday. And yes, if you realize that not the highest elected officials in our nation are not  safe... we are all not safe. And if you’re new here that is extremely unsettling. 

I know you want to hide from this horror because it’s all too much. I get it, really I do. But denial and complicity by white people  like you and I is exactly how we have allowed this horror to continue. ➡️Call your representatives, hold them accountable for what actions they did or did not take.⬅️

Educate and align yourself with and learn from organizations dedicated to creating a more EQUITABLE world.

There’s no time life for processing the horror of your white privileged glass house shattering (I know, it’s hard): we need action. Today.

I’ll tag accounts that have provided valuable information on how we can help and please feel free to add to them.

Sending you all love and strength; we sure as hell need it 🧡🧡🧡

#throwbackthursday #thisisamerica #capitolhill #advocate #advocacy #msactivist #checkyourprivilege #showup #dothework #bethechange #thisisms #butyoudontlooksick
    I do my best to share authentically about my life, I do my best to share authentically about my life, but I’ve never been terribly good at taking photos “in the moment.”

In fact, When I feel like taking pictures I usually take more than one, and I generally  schedule my Instagram posts (social media marketing manager habit!).

However, @thesparkledlife inspired me to take some pictures today of “every day life” and the not so cute or inspiring parts of Chronic Illness. So here are some pics of Dixie and I in my bed... as I write this from bed 😂 #BedIsMyHappyPlace

Dixie hasn’t been feeling well; the vet is treating her for stomach ulcers (and I am praying that is all it is, but will get an ultrasound to rule out anything else) so it’s been a rough few days for both of us. 

She’s cute, but the past few days haven’t been cute at all for me. 🐶🤷🏻‍♀️

Yes, it’s kinda ironic that I’ve been having stomach issues for a year and yet my procedures have been postponed due to the pandemic, and my dog is getting excellent care ... but if you’re a #DogMom like me you know I always put her first anyway, right?! 🥰🥰🥰
    New year, new cane.✨⁣ ⁣ Wait, is that not ho New year, new cane.✨⁣
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Wait, is that not how the saying goes?! 𝘞𝘩𝘢𝘵𝘦𝘷𝘦𝘳. A girl needs cute accessories and I legit can't believe I went this long with only one cane option (I don't need it daily so that's probably why I was able to restrain my shopping habit a bit 😂).⁣
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It's pink and sparkly so it needs a sassy fun name to match! ⁣
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Any ideas?! 🤔⁣
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PS. If you come at me with any New Year, New You cleanses or 'you are not enough' type BS along those lines I will now have two pretty canes I can choose from to smack you with. #SorryNotSorry ⁣
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#differentaidsfordifferentdays #babeswithmobilityaids #fashionablecanes #affiliate #pinkcane #pinkaccessories #pinkaddict #pinkglitter #thisisms #butyoudontlooksick #invisibleillness #sicknotugly #disabledandcute #disability #chronicillness #mswarrior #dystonia #sassyaf⁣
#spoonielife #chronicpain #bostonblogger #winterstyle
    Will you choose the light or the dark? ✨ #bethe Will you choose the light or the dark? ✨

#bethelight #lighttheworld #lightuptheworld
    I'm more than ready to turn my back on 2020.✌⁣ I'm more than ready to turn my back on 2020.✌⁣
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I'm ready to leave behind the guilt, the feeling's of 'not enough-ness', the victim mindset, the hurt and the pain of this past year.⁣
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Truthfully, I'm also ready to leave behind a lot of the grief I've been processing over the past year... and yet I know realistically that the grieving process doesn't simply stop because we want it to. 2020 was awful for the world, and my personal heartbreak from loss and divorce is a drop in the bucket of tears of grief from this year. 💔⁣
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The hurt that disabled people and marginalized communities have felt over our/their lifetimes and especially during this pandemic won't end simply because it's a New Year either.😷⁣
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Our work as advocates, as people working to make the world better, more accessible, safer, and healthier is 𝗳𝗮𝗿 𝗳𝗿𝗼𝗺 𝗼𝘃𝗲𝗿. ⁣
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I'm committing to leaving behind what doesn't serve me in my work to help our chronic illness community, but I know that work  isn't as simple as turning a page either. I'll continue to do the work internally and I'll be as outspoken as ever, and I hope you will too.❤⁣
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 What are your hopes for the New Year? ⁣
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#advocate #msactivist #msadvocate #thisisms #spoonie #disabled #disability #disabledandproud #chronicillness #butyoudontlooksick #invisibleillness #stayhomestaysafe #maskon #bethechange #showup #fuck2020 #divorce #griefjourney #selfgrowth #personalgrowth #newyear2021
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