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  • thejennagreen

    Jenna Green: MS Advocate
    Yesterday was an emotional day for me. It marked 5 Yesterday was an emotional day for me. It marked 5 months since we lost my Grandpa and it was also his favorite holiday, the Jewish New Year. Plus, of course the passing of RBG has amplified my fears for my future. For our future. Yesterday, I allowed myself time to feel my emotions and take care of myself. Yes, that included putting on some makeup and dinner with my immediate family. Today, I took it easy, and tomorrow, Iโ€™m back to working to create a better world. Call or email your senators. ๐Ÿ—ฃRegister to vote. Educate yourself. We must rise up; my friends. We must hold on to hope for the future and put in the work to make positive change happen. How are you managing the stresses of todayโ€™s world? I hope youโ€™re taking time to care for yourself โค๏ธ
    While Iโ€™m not Jewish, my father is and my grandp While Iโ€™m not Jewish, my father is and my grandpa was. So I am used to celebrating the high holidays with them. When I found out that the great Ruth Bader Ginsburg had passed last night at the beginning of the Jewish New Year, I researched the meaning. According to Jewish tradition, a person who dies on Rosh Hashanah as RBG did, is a tzaddik, a person of great righteousness. There is a Jewish teaching that says those who die just before the Jewish new year are the ones God has held back until the last moment because they were needed most & were the most righteous. Fitting for her, isnโ€™t it? May her memory be a blessing and a reminder to fight for the things that you care about โค๏ธ
    A little #FlashbackFriday because it feels like Fa A little #FlashbackFriday because it feels like Fall today, and Fall is my favorite season ๐Ÿ๐ŸŽƒโฃ โฃ And yes, I love pumpkin spice too! #notsorry โฃ โฃ Who else is team pumpkin spice?!โฃ โฃ #flashback #throwbackphoto #happymemories #fbf #bostonblogger #thisisms #butyoudontlooksick #invisibleillness #fallismyfavorite #pumpkinspicelover #psl #autumnvibes #fallvibes #spoonie #pumpkinspice #findjoy #littlejoys
    Itโ€™s a New Moon today and over the last six mont Itโ€™s a New Moon today and over the last six months Iโ€™ve developed a new moon ritual that I find helps me live more intentionally and joyfully. The new moon is a blank page, a fresh start, a moment to consider what we really want to call into our lives and what we actually need to let go of. Itโ€™s also a great time for rest and reflection, so for me that means meditation, journaling and a nice warm epsom salt bath with my favorite candles๐Ÿ›. What rituals do you have that bring you joy? ๐ŸŒ•Are you manifesting any new goals with this new moon? . #newmoonritual #newmoonvibes #newmoonmeditation #epsomsaltbath #beeswaxcandles #thisisms #spoonie #youareworthy #bloggersliveboston #manifestingabundance #manifestations #advocate #chronicillness #mindbodysoul #mindsetmatters #selfgrowthjourney #selfcarematters
    Life is hard. Coffee helps. So does celebrating ev Life is hard. Coffee helps. So does celebrating every small step, right?! โฃ โฃ Today, I took a shower, so we're gonna call that a win. โฃ โฃ What's your win today? โฃ โฃ #thisisms #mswarrior #multiplesclerosis #dystonia #chronicillness #chronicallyill โฃ #disability #chronicfatigue #autoimmunedisease #spoonie #invisibleillness #butyoudontlooksick #fatigue #wordstoliveby #wordsofwisdom #celebrateeverything #smallwins #findjoy #coffeelover #wisewords
    I hope youโ€™re as happy as puppy in the sunshine I hope youโ€™re as happy as puppy in the sunshine today โค๏ธโ˜€๏ธ
    ๐—œ ๐—น๐—ถ๐˜ƒ๐—ฒ ๐—ถ๐—ป ๐—ฎ ๐—ฐ๐—ผ๐—ป๐˜€๐˜๐—ฎ๐—ป๐˜ ๐˜€๐˜๐—ฎ๐˜๐—ฒ ๐—ผ๐—ณ ๐—ณ๐—ฒ๐—ฎ๐—ฟ. โฃ โฃ No, not of pandemics or even hornets. But of losing my insurance coverage and access to my disease modifying therapy. In a state that is known for caring about the health of their community, that should be the least of my concerns. โฃ โฃ Yet we are still trying to pass Senate bill 2843 addresses step therapy or "fail first" protocols and includes important continuity of care protections for patients.โฃ โฃ When a person switches jobs, or an insurance company shifts a drug to a higher cost-sharing tier, YOU should have a right to continue YOUR medication.โฃ โฃ ๐—–๐—ต๐—ฎ๐—ป๐—ด๐—ถ๐—ป๐—ด ๐—บ๐—ฒ๐—ฑ๐—ถ๐—ฐ๐—ฎ๐˜๐—ถ๐—ผ๐—ป๐˜€ ๐˜„๐—ต๐—ฒ๐—ป ๐˜†๐—ผ๐˜‚ ๐—ต๐—ฎ๐˜ƒ๐—ฒ ๐— ๐—ฆ ๐—ถ๐˜€๐—ปโ€™๐˜ ๐—ท๐˜‚๐˜€๐˜ ๐—ต๐—ฎ๐—ฟ๐—ฑ, ๐—ถ๐˜โ€™๐˜€ ๐—ฎ๐—ฐ๐˜๐˜‚๐—ฎ๐—น๐—น๐˜† ๐˜ƒ๐—ฒ๐—ฟ๐˜† ๐—ฑ๐—ฎ๐—ป๐—ด๐—ฒ๐—ฟ๐—ผ๐˜‚๐˜€. It can lead to symptom flares, hospital stays, rehab and life long increased disability. That also makes it far more costly then simply covering the patients original disease modifying therapy. โฃ โฃ Ensuring continuity of care and dismantling the fail first approach to treatment is essential to allowing those living with MS the stability and financial security of maintaining their care. โฃ โฃ Insurance companies are currently allowed to deny patients the medication that their doctor recommends in favor of a statistically less effective and older medication that must fail them (leading to possible permanent brain and health damage among other things) before they can have the medication their doctor recommends.โฃ โฃ ๐ŸงกIf we can change this in Massachusetts, we can set an important precedent nationwide. ๐—œ๐—ณ ๐˜†๐—ผ๐˜‚'๐—ฟ๐—ฒ ๐—ฎ ๐— ๐—” ๐—ฟ๐—ฒ๐˜€๐—ถ๐—ฑ๐—ฒ๐—ป๐˜, ๐—ฝ๐—น๐—ฒ๐—ฎ๐˜€๐—ฒ ๐˜๐—ฎ๐—ธ๐—ฒ ๐—ฎ ๐—บ๐—ผ๐—บ๐—ฒ๐—ป๐˜ ๐˜๐—ผ ๐—ฐ๐—น๐—ถ๐—ฐ๐—ธ ๐˜๐—ต๐—ฒ ๐—น๐—ถ๐—ป๐—ธ ๐—ถ๐—ป ๐—บ๐˜† ๐—ฏ๐—ถ๐—ผ ๐—ฎ๐—ป๐—ฑ ๐˜‚๐˜€๐—ฒ ๐˜๐—ต๐—ฒ ๐˜๐—ฒ๐—บ๐—ฝ๐—น๐—ฎ๐˜๐—ฒ ๐—ณ๐—ผ๐—ฟ๐—บ ๐˜๐—ผ ๐—ฐ๐—ผ๐—ป๐˜๐—ฎ๐—ฐ๐˜ ๐˜†๐—ผ๐˜‚๐—ฟ ๐—ฆ๐˜๐—ฎ๐˜๐—ฒ ๐—ฅ๐—ฒ๐—ฝ. ๐—ฎ๐—ป๐—ฑ ๐˜‚๐—ฟ๐—ด๐—ฒ ๐˜๐—ต๐—ฒ๐—บ ๐˜๐—ผ ๐˜€๐˜‚๐—ฝ๐—ฝ๐—ผ๐—ฟ๐˜ ๐˜๐—ต๐—ถ๐˜€ ๐—ฏ๐—ถ๐—น๐—น! ๐Ÿงกโฃ โฃ Thank you in advance for your support of this critical legislation.
    It's #chronicpainawareness and #dystoniaawareness It's #chronicpainawareness and #dystoniaawareness monthโฃ ... it's also time for my quarterly Botox injections to help manage the focal dystonia spasms in my feet, which are one of the many causes of my chronic pain. โฃ โฃ I'm making a claw shape with my hand because that is essentially what my feet do (moving constantly, not usually stuck). Focal #dystonia is a neurological condition, a type of dystonia, that affects a muscle or group of muscles in a specific part of the body, causing involuntary muscular contractions or abnormal postures. โฃ โฃ My dystonia is a symptom of my Multiple Sclerosis (it started with a flare nearly 4 years ago and never went away).โฃ โฃ Does it hurt? YES.โฃ โฃ The movement is constant? โฃ YES, even with the injections every 3 months, my feet and/or toes are always moving.โฃ โฃ I do also take a small dose of clonopin to sleep at night, but it doesn't stop the movement. โฃ โฃ Do you see a special doctor? Yes, I have a movement neurologist who diagnosed my spasms as dystonia in addition to my MS neurologist. I just collect doctors ๐Ÿ˜‚โฃ โฃ Are the shots painful? YES.โฃ Actually, the needles they use are small, but to manage my dystonia they put them in the bottom of both feet and on the inside of both calves. Before they inject the medicine, they use an EMG (electric shock wave) to ensure it's in the 'best' spot. Truthfully, I think that is the fucking WORST.โฃ โฃ How long till it takes effect?โฃ Thankfully my dr and I have worked together to adjust the type of botox and dosage so for me it now bring relief within a few days (by moving day on Friday ๐Ÿคž) and lasts until about 3 weeks before I'm due for my next round of shots. But yes, it does get worse before it gets better.โฃ I hope that answered some questions but feel free to ask me anythin. Most importantly, ๐—ฝ๐—น๐—ฒ๐—ฎ๐˜€๐—ฒ ๐—ฟ๐—ฒ๐—บ๐—ฒ๐—บ๐—ฏ๐—ฒ๐—ฟ ๐˜๐—ต๐—ฎ๐˜ ๐˜†๐—ผ๐˜‚ ๐—ป๐—ฒ๐˜ƒ๐—ฒ๐—ฟ ๐—ธ๐—ป๐—ผ๐˜„ ๐˜„๐—ต๐—ฎ๐˜ ๐˜€๐—ผ๐—บ๐—ฒ๐—ผ๐—ป๐—ฒ ๐—ถ๐˜€ ๐—ด๐—ผ๐—ถ๐—ป๐—ด ๐˜๐—ต๐—ฟ๐—ผ๐˜‚๐—ด๐—ต, ๐—ป๐—ผ ๐—บ๐—ฎ๐˜๐˜๐—ฒ๐—ฟ '๐—ต๐—ผ๐˜„ ๐—ด๐—ผ๐—ผ๐—ฑ' ๐˜๐—ต๐—ฒ๐˜† ๐—น๐—ผ๐—ผ๐—ธ. โค
    I still need to add a light second coat, but donโ€™t you love how a little paint can make something old feel NEW again?! โœจ . #motivationmonday #homeprojects #tabletransformation #homdecoration #oldisnewagain #transformed #purplefurniture #bohochicstyle #craftingismytherapy #spoonielife #chronicillnesswarrior #mswarrior #lifewithchronicillness #satisfyingpainting #creativelifehappylife
    Reminder, you are ALWAYS your own best advocate. ๐Ÿ’ช๐ŸปYes, consulting with trusted professionals is critical, but you do know your body better than anyone else, you are an expert! ...And if youโ€™re one of my fellow white friends, you can also be the best advocate in instigating the hard conversations among family members who may not see why dismantling white supremacy is critical, understand white privilege, or may need to be called out on their racist behavior and bias. โ€œStand for what is right. Even if it means standing alone." โ€” Suzy Kassemโค๏ธ
    #FlashbackFriday to when @minessa.konecky and I we #FlashbackFriday to when @minessa.konecky and I went on a little beach adventure last year... we had some good laughs and she taught me how to meditate! โฃ โฃ Spoiler alert: you can't really do it wrong. ๐Ÿง˜โ€โ™€๏ธโฃ โฃ I'd tried meditating before, but I always felt like it was hard and I wasn't doing it 'right'. Now, I've been meditating almost daily since this day, and I have to say that it's been very helpful for my mental health. Even a few minutes of quiet (or guided) meditation tend to improve my mood. โคโฃ โฃ Who else enjoys meditating?! โฃ โฃ #thisisms #flashbackphoto #goodtimes #happymemories #gratefulaf #lovemyfriends #missmyfriends โฃ #friendship #funtimes #sillyselfies #socialstrategysquad #happiness #findjoy #buildalife #meditation #meditate #selfgrowth #mentalhealthmatters #personalgrowth #mindful
    Well, I've been little extra stressed and exhauste Well, I've been little extra stressed and exhausted lately and this is why.... I'm getting ready to move in a week! ๐Ÿ˜ฌโฃ โฃ Is it outrageous to move during a pandemic when I'm immune compromised and in the same week that I'm getting my regular Botox injections to help manage my dystonia spasms?!โฃ โฃ Possibly, yes ๐Ÿ˜‚โฃ โฃ I know it will be worth all the effort (and the packing, ooooh the packing) and I am super excited to finally actually ๐˜ด๐˜ฆ๐˜ฆ the new place this weekend (because of the pandemic I've only seen virtual tours so far). But yeah, it's a lot right now. ๐Ÿ“ฆโฃ โฃ I promise to share lots of pictures and stories of the new place and my tips for moving with chronic illness (start early, pack and buy strategically), plus what not to do (which I've learned the hard way) when I've gotten through it all! โฃ โฃ In the meantime, if you have any last minute packing or moving tips, please share โคโฃ โฃ #thisisms #invisibleillness #immunecompromised #highrisk #mswarrior #multiplesclerosis #chronicillness #spoonie #spoonielife #dystonia #dystoniamovesmeโฃ #butyoudontlooksick #autoimmunedisease #chronicpain #fatigue #chronicallyill #sicknotugly #moving #packing #bostonblogger #bostonbusinesswomen #overwhelm
    (PC: @fulcandles)โฃ โฃ ๐Ÿ‘‹Hey friend, just a re (PC: @fulcandles)โฃ โฃ ๐Ÿ‘‹Hey friend, just a reminder that you have made it through some tough shit. So no matter what you're facing now, I have faith in you.โฃ โฃ And yes, this is a pep talk for me too. Botox injections for the dystonia spasms in my feet are next week... and while it helps me greatly, it wears off every 3 months. And, damn, it's painful and difficult right now. But I've made it through this many times before.โฃ โฃ And this is also an important reminder to me to never get bangs again ๐Ÿ˜‚ #middleschoolmistakesโฃ โฃ โฃ #thisisms #dystonia #mswarrior #wordsofwisdom #wordstoliveby #wisewords #truthbetold #youcandohardthings #yougotthis #multiplesclerosis #invisibleillness #disability #disabled #chronicpain #chronicillness #spoonie #spoonielife #chronicfatigue #wordsoftheday #peptalk
    "Rise above the storm and you will find the sunshi "Rise above the storm and you will find the sunshine." โ€” Mario Fernรกndez โ˜€โฃ โฃ I'm trying to have less 'stuff'....soooooo how many sunglasses do you think a girl ๐˜ณ๐˜ฆ๐˜ข๐˜ญ๐˜ญ๐˜บ needs?! Be brutally honest, because you know I have too many ๐Ÿ˜‚โฃ โฃ #thisisms #mswarrior #sunshineandshades #sunglassesaddict โฃ #mswarrior #spoonielife #invisibleillness #chronicillness #chronicpain #spoonie #butyoudontlooksick #bostonblogger #disabled #disability #sunshinequotes #riseabovethestorm #facethsun #sunglasses #sunglassesaddict
    I run on magic (and coffee) โœจ I love the entire I run on magic (and coffee) โœจ I love the entire @moroccanmagic lip balm and skincare line, and their new Awake + Sleep sheet masks are no exception. ๐Ÿ˜The clean high-quality ingredients make my skin glow-y and happy. Do you tend to forgo self-care when you're stressed? I used to. Now, I realize that it's even more important for me when I'm under stress to take care of myself.โค๏ธ It's not all about sheet masks and bubble baths for me, but it most definitely helps! How are you practicing self-care on this beautiful weekend? Tap the affiliate link in my bio to shop Moroccan Magic and save 25% on your purchase with code MAGICVIBES25 -> @thejennagreen #mmbrandambassador #affiliate #brandambassador #mymoroccanmagic #moroccanmagic #cleanbeauty #cleanskincare #crueltyfreebeauty #bostonblogger #bostonbusinesswomen #headupheartopen #selfcaresunday #chronicillness #womenowned #nontoxicbeauty #naturalskincare #spoonielife #nontoxic #iloveskincare #chronicallyill #selfcareisntselfish
    A #fridayflashback is the next best thing to an ac A #fridayflashback is the next best thing to an actual girls night out, right?! Cheers to happy days and happy memories โค๏ธ๐Ÿฅ‚
    Truthfully, I haven't had a lot of genuinely ๐˜ซ๐˜ฐ๐˜บ๐˜ง๐˜ถ๐˜ญ moments these past few months. โฃ โฃ I can smile through any type of pain, because that's who I am. ๐Ÿคทโ€โ™€๏ธIt's part of how I cope. โฃ โฃ But this moment, after a walk with my best girl on a beautiful day, this was true joy. And for that, I am super grateful. โฃ โฃ I try to share authentically about my life and my health as much as possible, but there have been some personal things going on that I haven't been able to share publicly yet. I promise that I will when I'm ready. โฃ โฃ And I love and appreciate you all for all of your support now and always. โคโฃ โฃ #thisisms #dogmomlife #lovemydog #joyful #findjoy #mswarrior #dystonia #disabled #multiplesclerosis #happydog #bostonbusinesswomen #bostonblogger #butyoudontlooksick #invisibleillness #gratefulaf #bestdogever #spooniecommunity #chronicillness #chronicillnesscommunity โฃ #chronicpain #spoonie #spoonielife #disability
    Today would have been my Grandma's 96th birthday. Today would have been my Grandma's 96th birthday. While we lost her when I was in high school, having just lost my Grandpa makes this day a little more emotional than usual.โฃ โฃ This photo is from their very first date (how cute are they!), while my Grandpa was on leave and in the Air Force during WWII. He was a Boston born and bred airman and they met at a dance for servicemen in LA. ๐—›๐—ฒ ๐˜๐—ผ๐—น๐—ฑ ๐—ต๐—ฒ๐—ฟ ๐˜๐—ต๐—ฎ๐˜ ๐—ณ๐—ถ๐—ฟ๐˜€๐˜ ๐—ป๐—ถ๐—ด๐—ต๐˜ ๐˜๐—ต๐—ฒ๐˜† ๐—บ๐—ฒ๐˜ ๐˜๐—ต๐—ฎ๐˜ ๐—ต๐—ฒ ๐˜„๐—ฎ๐˜€ ๐—ด๐—ผ๐—ถ๐—ป๐—ด ๐˜๐—ผ ๐—บ๐—ฎ๐—ฟ๐—ฟ๐˜† ๐—ต๐—ฒ๐—ฟ...๐˜€๐—ต๐—ฒ ๐˜๐—ผ๐—น๐—ฑ ๐—ต๐—ถ๐—บ ๐—ต๐—ฒ ๐˜„๐—ฎ๐˜€ ๐—ฐ๐—ฟ๐—ฎ๐˜‡๐˜†. And as he always said, he was, about her. โคโฃ โฃ They were married more than 50 years, and while they certainly had their struggles, they truly had a love story that was better than any fairy tale. โฃ โฃ My Grandma lived her life joyfully, with love in her heart, and with excitement for everything.๐Ÿ˜ I think we could all use a little more of those qualities lately, don't you?โฃ โฃ #throwback #lifelessons #lovestory #mygrandparents #lovemyfamily #family #livejoyfully #findjoy #lovemore #lifeisanadventure #happymemories #missingyou
    ๐ŸŒˆ"To find the rainbow and life's incredible bea ๐ŸŒˆ"To find the rainbow and life's incredible beauties, learn to play with adversity" โœจ Debasish Mridha โฃ โฃ #motivationmondayโฃ #thisisms #motivationalmonday #instamotivation #mswarrior #multiplesclerosis #wrapmecool #cupshe #invisibleillness #butyoudontlooksick #invisibleillness #disability #dystonia #chronicpain #chronicillness #keepgoing #yougotthis #youareenough #rainbows #adversity #bostonblogger #bostonbusinesswomen
    This is my face when I give in to my Pinterest obs This is my face when I give in to my Pinterest obsession and try to DIY makeover something ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ Itโ€™s been a rough week, I accidentally sprained my thumb so Iโ€™m rocking a cool brace now, but swipe through and see how I transformed my dark wood nightstand to my final results (worth it it the end)! Do you have any DIY projects in progress?? . #thisisms #diyhomedecor #diyhome #diyfurnituremakeover #mswarrior #multiplesclerosis #spoonie #spoonielife #bostonblogger #bostonbusinesswomen #socialstrategysquad #disabilityawareness #butyoudontlooksick
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