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  • thejennagreen

    Jenna ๐ŸงกMS Advocate
    What words of wisdom have gotten you through espec What words of wisdom have gotten you through especially tough times? โ€œSomeday youโ€™re gonna look back on this moment of your life as such a sweet time of grieving. Youโ€™ll see that you were in mourning and your heart was broken, but your life was changing.โ€ - ๐Ÿ’”โค๏ธ@elizabeth_gilbert_writer Damn, this quote has resonated with me since I separated from my husband last September. While Iโ€™m still heartbroken and grieving, but now more so because of the death of my Dixie girl ๐Ÿถ, looking back now, I do finally see how my life had changed for the better since our separation. If youโ€™re struggling, remember there is a light at the end of the tunnel โœจ #thisisms #divorce #grief #griefprocess #resilient #heartbroken #grieving #butyoudontlooksick #chronicillnesswarrior #heartbreak #invisibleillness #spoonie #elizabethgilbert #wordsofwisdom #transformation #healingjourney #wednesdayquotes #summerstyles
    Just in case no one told you today, Iโ€™m proud of Just in case no one told you today, Iโ€™m proud of you. โœจ โ€œLook closely and you will see almost everyone carrying bags of cement on their shoulders. Thatโ€™s why it takes courage to get out of bed in the morning and climb into the day.โ€ ~Edward Hirsch I know Dixie would be proud of me too โค๏ธ๐Ÿถ #GriefandGratitude #wordsofwisdom #quotesaboutlife #everyoneisfightingabattle #couragequotes #invisibleillness #mentalhealthmatters #mentalhealthadvocate #mentalhealthwarrior #missmydog #griefandloss #griefjourney #heartbroken #keeptrying
    My face when I try to explain to someone why this My face when I try to explain to someone why this should give a damn about other peopleโ€ฆ and my youngest niece is around so I donโ€™t wanna curse at them ๐Ÿ˜‚๐Ÿคท๐Ÿปโ€โ™€๏ธ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ Fun fact: You donโ€™t have to be ON disability to care about people who are and believe that their lives have value. ๐Ÿ™‹๐Ÿปโ€โ™€๏ธ Ready to show you give a damn without even needing to lift a whole hand?!๐Ÿคณ๐ŸปComment below when youโ€™ve texted and encourage your friends as well ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰ Check out this #Repost @cripcampfilm with @make_repost A bill was re-introduced this week called the Supplemental Security Income Restoration Act of 2021 and it would change the lives of so many in our community! โ € โ € There are two versions in the House right now (H.R. 3763 introduced 6/8 and H.R. 3824 introduced 6/11) both headed to Ways and Means, and S.2065 introduced in the Senate 6/15 headed to Finance Committee. Please consider reaching out to your representatives and those on each committee to ask them to support it. You can also text โ€œSIGN PSLOAEโ€ to 50409 which will automatically send letters to your reps for you!! (It takes less than one minute!) โ € .โ € .โ € .โ € ID: Black text over a light pink background reads "The SSI Restoration Act of 2021 Will:โ€. An icon of a coin in a box with text under "Raise monthly disability income to the poverty level". A second icon of a piggy bank "change savings amount from $2k to $10k". Heart with hands icon "remove marriage ban and promote marriage equality". Graduation cap on top of books icon "update outside income restrictions". House with family icon "remove penalties for receiving help from family & friends". Text "SIGN PSLOAE" to 50409 #thisisms #disabilitypridemonth #disabilityadvocate #advocate #bethechange #speakup #showup #butyoudontlooksick #invisibleillness #mswarrior #ada31 #disabilityrights #disabledandcute #advocates #giveadamn #humanityfirst
    What has someone said recently that really stuck w What has someone said recently that really stuck with you??? When discussing authenticity in todayโ€™s world, my mom, who still has an aol email and no social media ๐Ÿ“ฉ, had some words of wisdom that I think youโ€™ll all appreciate: โ€œIf youโ€™re a kind person, WHY try to be anything besides who you really are?!โ€ Thatโ€™s a simple statement, but such a good reminder, right?! โค๏ธ #momsadvice #tipsfrommymom #wordsofwisdom #selflove #loveyourselffirst #spoonielife #lovemymom #vacationvibes #leoseason #beyourself #authenticallyme #selfcaresunday
    What do you wish you could teach your younger self What do you wish you could teach your younger self? If thereโ€™s one thing I hope to teach the amazing young humans in my life, itโ€™s to prioritize your joy and self worth. โค๏ธ Spending time with my family, and especially my youngest niece, helped me to remember how critical joy is for our own self care and how we show up for others โœจ Even as I am resting and paying the โ€œtaxโ€ for a few days of fun, I look down at my glitter nails and my heart fills with joy. ๐Ÿ’…โ˜บ๏ธ [img: reads โ€œWhen you recover or discover something that nourishes your soul and brings joy, care enough about yourself to make room for it in your life.โ€โ€” Jean Shinoda Bolen inside a blue circle next to a sandy beach and one adult hand under a childโ€™s hand with matching glitter nails] #selfcareday #selfcaretips #findjoy #prioritizeyourself #fillyourowncup #joyfulliving #lovemyniece #tinybestfriend #beachvibes #vacationvibes #lifelessons #mindfulliving #auntlife #auntlifeisthebestlife #tomyniece #auntielife #chronicillness #thisisms #mswarrior
    What helps you have more fun in the summer time?! What helps you have more fun in the summer time?! โ˜€๏ธ Now that I have heat intolerance, I can't live without my @koldtec ice towel.โ„๏ธโ„๏ธ I think that this bamboo wrap and the ice packs are some soft of ๐˜ง๐˜ฐ๐˜ณ๐˜ฆ๐˜ท๐˜ฆ๐˜ณ ๐˜ค๐˜ฐ๐˜ญ๐˜ฅ magic... but they say it's a patented FlexIce thats keeps you 5X colder than an ordinary โ€˜wetโ€™ cooling towel. I love that it doesn't get wet and soggy, plus it's soft and of coures I have it in pink! What color will you get?! You can grab multiple and ๐˜€๐—ฎ๐˜ƒ๐—ฒ $20 ๐—ผ๐—ณ๐—ณ ๐˜๐˜„๐—ผ ๐—ผ๐—ฟ $10 ๐—ผ๐—ณ๐—ณ ๐—ผ๐—ป๐—ฒ with my brand ambassador code JENNA10 (all caps, no spaces. Link in bio too)๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰ I still avoid the highest heat times of the day, wear a big hat, sunscreen, stay hydrated, etc., cheers to a #HotDisabledSummer ๐Ÿ–๏ธ [img description: Jenna, a short woman with short wavy hair, smiles wearing her @koldtec ice wrap in pink and a pair of skinny jeans with a grey short sleeve shirt with pink flower sleeves from @thebluegarnetboutique in a green backyard ] #affiliate #brandambassador #thisisms #koldtec #linkinbio #disabilitypridemonth #mswarrior #multiplesclerosis #heatintolerance #toohot #summerstyle #butyoudontlooksick #invisibleillness #chronicillness #chronicfatigue #summeroutfit #hotdisabilityaidsummer
    Who were you before the world told you that y๐™ค๐™ช ๐™ฌ๐™š๐™ง๐™š ๐™ฉ๐™ค๐™ค ๐™ข๐™ช๐™˜๐™? Or ๐™ฃ๐™ค๐™ฉ ๐™š๐™ฃ๐™ค๐™ช๐™œ๐™? Since early childhood, I remember society telling me that I was too loud, too big, too bright, too talkative, not small enough, not fast enough, blah blah blah. ๐Ÿ™„ You know what?! It's taken me nearly 37 years, but I'm now evolving into ME. Society can take it or leave it. So I'm gonna wear the two piece swimsuit.๐Ÿ‘™ Buy the big bright pink float that matches my bright pink cane. Dance in the ocean. ๐ŸŒŠAnd laugh with the universe as much as I can. โœจ How will you feed your soul today?! #thisisms #hotdisabledsummer #disabilitypride #disabilitypridemonth #mswarrior #multiplesclerosis #butyoudontlooksick #invisibleillness #selfgrowthjourney #personalgrowthjourney #plussized #summer2021 #plussizeswimwear #uniquevintage #leoseason2021 #leoenergy
    What inspires you?! What sparks your creativity?! What inspires you?! What sparks your creativity?! Admittedly, Iโ€™ve lost some spark this past year, and especially this past many. Iโ€™m working on getting it back though โœจ As @elizabeth_gilbert_writer says โ€œA creative life is an amplified life. Itโ€™s a bigger life, a happier life, an expanded life, and a hell of a lot more interesting life. Living in this mannerโ€”continually and stubbornly bringing forth the jewels that are hidden within youโ€”is a fine art, in and of itself.โ€ ๐ŸŒˆ [img description: Jenna, a white woman with shoulder length wavy hair, is laughing wearing red lipstick in a green backyard. Sheโ€™s wearing skinny jeans and a black short sleeve tunic both from @thebluegarnetboutique ] #thisisms #elizabethgilbert #elizabethgilbertquotes #creativityquotes #mindsetmatters #lifelessons #findjoy #findhappiness #disabilitypridemonth #disabilityadvocate #advocate #butyoudontlooksick #invisibleillness #griefjourney #healingjourney
    Who else is team nap hard?! ๐Ÿ™‹๐Ÿปโ€โ™€๏ธ Ok, Who else is team nap hard?! ๐Ÿ™‹๐Ÿปโ€โ™€๏ธ Ok, I canโ€™t usually sleep during the dayโ€ฆ but I usually find myself needing to take a rest and/or meditation break each afternoon.๐Ÿง˜โ€โ™€๏ธ๐Ÿ˜ด Sometimes I miss the days of being non-stop busy; but I know that listening to my body and not overdoing it is one of the greatest lessons Iโ€™ve learned since my diagnosis. ๐Ÿงก PC: @fulcandles black letterboard with white letters on top of white blankets that reads โ€œwhy are the choices work hard or play hard? I want to nap hardโ€ #repost #mindfulness #naptime #consciousness #truths #thisisms #sleepy #mindfulliving #chronicfatigue #disabled #spooniestrong #chronicillness
    On Tuesday, I had a big personal win and the privi On Tuesday, I had a big personal win and the privilege of testifying in front of the Members of the Joint Committee on Health Care Financing in support of H 1311/S 756 and how it will benefit those of us who live in the Commonwealth with multiple sclerosis (MS) and additional chronic illnesses like myself. I was diagnosed with MS in my โ€˜primeโ€™ at age 31 in early 2016, becoming one of the nearly one million people living with this disease in our country. Out of nowhere, I lost my vision, became easily fatigued with chronic pain, and most devastatingly lost the privilege of my healthy future. I remained hopeful though, as I am a lifelong resident of Massachusetts with access to our world renowned doctors and excellent insurance.๐Ÿฉ When I was diagnosed, my neurologist discussed all of the DMT options with me and advised that I start with the statistically most effective therapy on the market. ๐Ÿงช I learned then that in addition to the scientific studies on medications, there is a plethora of data showing that avoiding stress will help you to avoid additional damage to your brain and nervous system. ๐Ÿง˜โ€โ™€๏ธ However, there was NO scientific data to measure the severe stress and the damage that was done to my mental and physical health when insurance denied my request for treatment and introduced me to the concept of step therapy.โŒ I personally urge this committee โ€“ and the larger legislative body @massgov โ€“ to pass H 1311/S 756 this session. Ensuring the seven in ten residents like me that live with chronic diseases access to step therapy protocol exceptions will not only improve our quality of life but is likely to ultimately end up saving the state money. โญ๏ธ This is just a short snippet of my testimony, and if youโ€™re a Mass resident you can still share your support for the bill with your legislators (link in bio). Itโ€™s not going to solve all of the issues I have with the healthcare system, but itโ€™s a start and you all know Iโ€™ll continue to be a persistent advocate! ๐Ÿ™Œ๐Ÿป Who else had a win this week (they havenโ€™t voted yet, but just being able to testify virtually was my win!). ๐ŸงกShare your stories with us and letโ€™s celebrate together. ๐ŸŽ‰
    My reactions when someone tells me "You don't look My reactions when someone tells me "You don't look Disabled" ๐Ÿ™„โฃ๐Ÿ™‹๐Ÿปโ€โ™€๏ธ โฃ That is some ableist ๐˜ฃ๐˜ถ๐˜ญ๐˜ญ๐˜ด๐˜ฉ๐˜ช๐˜ต right there. โฃ โฃ It's 2021, and while we know there are a shit ton of systems that need to be changed, ๐˜„๐—ฒ ๐—ป๐—ฒ๐—ฒ๐—ฑ ๐˜๐—ผ ๐˜€๐˜๐—ฎ๐—ฟ๐˜ ๐—ฐ๐—ต๐—ฎ๐—ป๐—ด๐—ถ๐—ป๐—ด ๐—ผ๐˜‚๐—ฟ ๐—ฎ๐˜๐˜๐—ถ๐˜๐˜‚๐—ฑ๐—ฒ๐˜€ ๐˜๐—ผ๐˜„๐—ฎ๐—ฟ๐—ฑ๐˜€ ๐—ฑ๐—ถ๐˜€๐—ฎ๐—ฏ๐—ถ๐—น๐—ถ๐˜๐˜† ๐˜๐—ผ๐—ผ. โฃ โฃ Being disabled doesn't make you ugly, invaluable, incapable, or anything "less than".โฃ โฃ It's a part of my identity now and I own and wear the label proudly, because you know what? I can't control my disability, but I CAN control how I feel about it. And no, I'm not going to tell you that the only disability is a bad attitude (again, that is ableist bullshit). โฃ โฃ I'm going to continue to take up space (as much as I need depending on the day and mobility aid) without apology. โฃ โฃ I'm going to continue to fight for Equity, Diversity and Inclusion for all. Because ๐—œ ๐—ฑ๐—ผ๐—ป'๐˜ ๐—ป๐—ฒ๐—ฒ๐—ฑ ๐˜๐—ผ "๐—ผ๐˜ƒ๐—ฒ๐—ฟ๐—ฐ๐—ผ๐—บ๐—ฒ" ๐—บ๐˜† ๐—ฑ๐—ถ๐˜€๐—ฎ๐—ฏ๐—ถ๐—น๐—ถ๐˜๐˜† (and FYI, I didn't give myself Multiple Sclerosis either ๐Ÿ™„). What we need IS a society that is dedicated to helping disabled people live their best lives. โคโฃ โฃ How are YOU living your best life today? [img descriptions: first photo Jenna, a white woman with short wavy hair, is looking down and away from the camera with a side eye and second photo sheโ€™s smiling and raising her right hand. In both photos sheโ€™s standing outside and wearing colorful tie dye shirts from @thebluegarnetboutique ] โฃ #disabilitypridemonth #disabled #disabilitypride #disabledandcute #disability #thisisms #multiplesclerosis #mobilityaids #ada โฃ #chronicillness #invisibleillness #chronicpain #spoonie #spoonielife #butyoudontlooksick #bostonblogger #disabilityadvocate #dystonia #sicknotugly #activist #advocate #ableism #mindsetmatters #mindsetiseverything #bethechange #checkyourprivilege #liveyourbestlife
    Who else has been guilty of this?! ๐Ÿ‘‹โฃ โฃ We Who else has been guilty of this?! ๐Ÿ‘‹โฃ โฃ We are all doing our best and there is NO timeline for healing, grieving, or life โ€œmilestonesโ€ etc. โฃ โฃ With tomorrow marking one month since my best friend and baby dog, Dixie, passed away and it being nearly a year since I separated from my husbandโ€ฆ well, I know I need this reminder even when I have a โ€œdecent handleโ€ on my negative self talk. โฃ โฃ Iโ€™ve learned to trust that taking the time I need to heal and grow will never lead me in the wrong direction โœจ #TheUniverseHasYourBackโฃ โฃ I know life can be hard and you deserve everything good, but donโ€™t make the process harder on yourself by adding guilt or blame.โฃ โฃ Trust the process and hold on to hope that it will get easier โค You are not alone โคโฃ [img description: from @mirrorsreflectyou a light pink mirror on a grey wall that reads โ€œstop being so hard on yourself for still needing timeโ€ ] โฃ โฃ #mentalhealth #selflove #selfcare #heartbreakquotes #depressionawareness #selfcaretips #mirrorsreflectyou #positivity #youdoyou #growth #mindsetshift #repost #griefandloss #healingjourney #mondaymindset #selftalk #selfgrowthprocess #divorce #griefprocess #chronicillness
    "Please join me in wishing the happiest of birthda "Please join me in wishing the happiest of birthdays to my dear friend and fellow advocate @dawn_janine of @myelinmelanin! ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰ I truly can't imagine how I would have gotten through this past year without Dawn's friendship, support, and love. She is a true light in our #MultipleSclerosis community, one of the kindest most people I know, and I am forever grateful to call her one of my closest friends (not in distance, but in heart!). โค๏ธ "Some people arrive and make such a ๐—ฏ๐—ฒ๐—ฎ๐˜‚๐˜๐—ถ๐—ณ๐˜‚๐—น ๐—ถ๐—บ๐—ฝ๐—ฎ๐—ฐ๐˜ on your life, you can barely remember what life was like without them." #SoulFriend -Anna Taylor #thisisms #becausems #multiplesclerosisawareness #mscommunity #disabilityadvocate #msactivist #msadvocate #internetfriendsarerealfriends #gratefulaf #lovemyfriend #meanttobefriends #chronicillness #spoonie #spoonielife #youarenotalone #advocates #butyoudontlooksick #invisibleillness #mswarriors
    #IStayStrongFor ME. Self love in todayโ€™s societ #IStayStrongFor ME. Self love in todayโ€™s society is difficult for anyone, but especially if you are one of the 7 in 10 with #ChronicDisease ๐Ÿ‘‹ And putting yourself first?! Society certainly doesnโ€™t support that (beyond the #selfcare memes). Yet the only way we can create consistent change for our future and dismantle the systems of white supremacy that work so well to keep marginalized groups down is by putting ourselves first. Only then will we have the energy and compassion to do what we can for others. The work I am determined to do in this world is beyond hard. But our humanity depends on it, which means I must stay strong to be apart of the change in healthcare and beyond. ๐Ÿ”ฅ I didnโ€™t always feel this way, and you may disagree, but I now believe I must stay strong for myself first, and truly be my own biggest supporter, in order to be able to help anyone else. ๐Ÿ‘†๐Ÿป โค๏ธAs my @consciousink of the week says โ€œI nourish myself with love. I am fulfilledโ€. Who do YOU stay strong for? #thisisms #chronicdiseaseday2021 #chronicdiseaseday #iwontbequietsoyoucanbecomfortable #seveninten #bethechange #msactivist #advocate #healthcarematters #humanity #butyoudontlookdisabled #butyoudontlooksick #invisibleillness #disabilitypridemonth #disabilityadvocate #mswarrior #speakup #putyourselffirst #putyouroxygenmaskonfirst
    What phrases make you cringe as a disabled person? What phrases make you cringe as a disabled person?! It's #DisabilityPrideMonth and dammit, I've finally learned to embrace my body, my disabilities, and have pride in all aspects of who I am and who I am trying to become. And yes, ๐—ฏ๐—ฒ๐—ถ๐—ป๐—ด ๐—ฑ๐—ถ๐˜€๐—ฎ๐—ฏ๐—น๐—ฒ๐—ฑ ๐—ถ๐˜€ ๐—ฝ๐—ฎ๐—ฟ๐˜ ๐—ผ๐—ณ ๐˜„๐—ต๐—ผ ๐—œ ๐—ฎ๐—บ (you may feel differently for yourself, to each their own.). It has taken me years to undo the internalized ableism in my brain (and truly it's still a work in progress most days), but yes I AM PROUD of myself and I think we all deserve to feel that way! ๐ŸŽ‰ I know I've made a shit ton of mistakes over my lifetime when talking about disability. And who wouldn't given how society treats disabled people?! What are some of the things that you think able-bodied people need to know offend disabled people? Here's my list but I'm sure there are more: ๐Ÿ™„ "you're only as disabled as you think you are" or "the only real disability is a bad attitude" ๐Ÿ™„''you're too young to be disabled" ๐Ÿ™„"but you don't look sick" ๐Ÿ™„"but you didn't need your mobility aid yesterday?!" And of course, refusing to actually SAY disabled. I don't need any other fluffy terms to help make ๐˜ฐ๐˜ต๐˜ฉ๐˜ฆ๐˜ณ ๐˜ง๐˜ฐ๐˜ญ๐˜ฌ๐˜ด feel comfortable with my disability. What else would you add to this list for #disabilityawareness? [img description: Jenna, a white woman with red short wavy hair, smiles with her hands on her hips wearing a black floral shorts jumper and pink sunglasses. Sheโ€™s standing in front of a green backyard. ] #thisisms #multiplesclerosis #mswarrior #disability #checkyourprivilege #invisibleillness #butyoudontlooksick #effyourbeautystandards #chronicallyill #chronicillness #youareenough #stopthestigma #mindsetmatters #speakup #dystonia #msadvocate #advocate #disabled #disabledandcute #disabilitypride #disabilityadvocate
    One day you'll look back and findโฃ even when thi One day you'll look back and findโฃ even when things did not go your wayโฃ or turn out to be right,โฃ you were still moving aheadโฃ with unshakable hope and courageโฃ towards never ending light. ๐ŸŒˆโฃ @poetryofdhimanโฃ โฃ โฃ Itโ€™s been a hell of a struggle to re-ignite the hope and courage within my soul lately, but itโ€™s still thereโ€ฆ pushing me slowly forward. โœจโฃ โฃ And even when Iโ€™m fucking pissed at cruelty of the universe, Iโ€™m undeniably grateful for its beauty and grace. ๐ŸŒ…โฃ โฃ What are you grateful for today?โฃ โฃ #poetryofdhiman #gratefulaf #mothernature #summerrain #summersunsets #danceintherain #griefandloss #griefjourney #naturesbeauty #mswarrior #chronicillnessโฃ #healingjourney #holdontohope
    What exactly are you celebrating this weekend? #fo What exactly are you celebrating this weekend? #foodforthought #Repost @privtoprog with @make_repost ใƒปใƒปใƒป It was only a few years ago that I (@thewildsister) started to actually think about the meaning of โ€œIndependence Day.โ€ I remember the first one after the incident in the Starbucks, in 2018, only a few months after I started paying attention and learning the truths of history that I had never learned in school. I had a lot of conflicting feelings that day, and I still do every year. But I have come to this: my expectation for America is the same as my expectation for anyone I loveโ€”to live up to their promises. #ShowUp
    This is ๐—ก๐—ข๐—ง the July I had planned for.โฃ โฃ Hell, I've lived with Multiple Sclerosis and identified as having a disability for over five years now, and the uncertainty of life ๐˜ด๐˜ต๐˜ช๐˜ญ๐˜ญ surprises me at times. This isn't even the post I had planned to share on the first of #DisabilityPride month. โฃ โฃ In the past year, I've gone through ๐—ฎ ๐—น๐—ผ๐˜ challenges, hardships of all different kinds... plus the recent heartbreaking loss of my soulmate/favorite photobomber in this #TBT photo here, Dixie ๐Ÿถ โฃ โฃ I know many of you have similar stories and have dealt with significant losses. I'll admit that I've had a lot of 'why ME' and WTF moments esp. over the past few weeks. ๐—”๐—ป๐—ฑ ๐˜†๐—ฒ๐˜, ๐—ป๐—ผ๐—ป๐—ฒ ๐—ผ๐—ณ ๐—บ๐˜† ๐˜€๐˜๐—ฟ๐˜‚๐—ด๐—ด๐—น๐—ฒ๐˜€ ๐˜๐—ต๐—ถ๐˜€ ๐˜†๐—ฒ๐—ฎ๐—ฟ (๐—ผ๐—ฟ ๐—ฒ๐˜ƒ๐—ฒ๐—ฟ) ๐˜„๐—ฒ๐—ฟ๐—ฒ ๐—บ๐—ฎ๐—ฑ๐—ฒ ๐—ฒ๐˜ƒ๐—ฒ๐—ป ๐—ต๐—ฎ๐—ฟ๐—ฑ๐—ฒ๐—ฟ ๐—ฏ๐—ฒ๐—ฐ๐—ฎ๐˜‚๐˜€๐—ฒ ๐—ผ๐—ณ ๐—บ๐˜† ๐—ฟ๐—ฎ๐—ฐ๐—ฒ. ๐—ง๐—ต๐—ฎ๐˜'๐˜€ ๐˜„๐—ต๐—ฎ๐˜ ๐—ถ๐˜ ๐—บ๐—ฒ๐—ฎ๐—ป๐˜€ ๐˜๐—ผ ๐—ต๐—ฎ๐˜ƒ๐—ฒ ๐—ฝ๐—ฟ๐—ถ๐˜ƒ๐—ถ๐—น๐—ฒ๐—ด๐—ฒ. โœ”โฃ โฃ As we continue our work in #DisabilityAdvocacy, and pride, I believe it's critical that we remember that BIPOC and LGBQTIA people are facing additional hardships that white cis straight people don't have and create FULLY inclusive disability and advocacy spaces. #CheckYourPrivilegeโฃ โฃ ๐—ช๐—ต๐—ฎ๐˜ ๐—ฎ๐—ฟ๐—ฒ ๐˜†๐—ผ๐˜‚๐—ฟ ๐—ฝ๐—น๐—ฎ๐—ป๐˜€ ๐—ณ๐—ผ๐—ฟ ๐˜๐—ต๐—ถ๐˜€ ๐—บ๐—ผ๐—ป๐˜๐—ต? I'm super out of the loop so I'd appreciate any links or info on Disability Pride or Advocacy events/virtual things I can support and attend! โฃ โฃ #ThisisMS #disability #butyoudontlooksick #msactivist #msadvocate #disabilityadvocate #disabilitypridemonth #hellojuly #throwbackthursday #griefandloss #missmydog #privileged #multiplesclerosis #chronicillness #invisibleillness #gratefulaf #pride #bethechange #ableism #resilience #blackdisabledlivesmatter #advocate #immunecompromised
    No one escapes a major life change or trauma. It i No one escapes a major life change or trauma. It is painful to know that youโ€™ve lost something you arenโ€™t sure you can live without. Whether itโ€™s a relationship, a chronic illness diagnosis or the death of your best friend, there are things you can and should do after experiencing a major loss. Since I've dealt with the first two examples and I'm now grieving the loss of my beloved Dixie girl ๐Ÿถ, I thought it would be a good time to go back to the basics I've learned during therapy and share them with you all.โฃ โฃ I'd love to also hear ๐˜„๐—ต๐—ฎ๐˜ ๐—ต๐—ฒ๐—น๐—ฝ ๐˜†๐—ผ๐˜‚๐˜€ ๐—ด๐—ฒ๐˜ ๐˜๐—ต๐—ฟ๐—ผ๐˜‚๐—ด๐—ต ๐—น๐—ผ๐˜€๐˜€? โฃ โฃ โžกLet go of blameโฃ Sometimes things just happen. And yet, itโ€™s so easy for our minds to search for the answer to who is to blame. Or we tell ourselves if we were different somehow, we wouldnโ€™t have made that mistake that leads to the loss. Blame and judgment serve no purpose. In fact, they hold us back from moving forward past the pain.โฃ โžกBe extra gentle with yourselfโฃ That means different things to different people.ive yourself space to grieve. Or you may get a massage or spend time with a trusted, loving friend. Or you might sleep most of the weekend. Whatever it is, itโ€™s fine. Just cut yourself some slack right now - itโ€™s okay!โฃ โžกAllow yourself to feelโฃ The last thing we want is to feel the pain and sadness. But doing so is an important part of the healing process. Find a safe place to do that, whether itโ€™s at home alone, with a trusted friend or therapist.. Pushing away those โ€œbadโ€ feelings will only intensify how strong they are and how long they last.โฃ โžก Ask for helpโฃ On social media everyone elseโ€™s life looks perfect. The fact is, ๐—ป๐—ผ ๐—ผ๐—ป๐—ฒโ€™๐˜€ ๐—น๐—ถ๐—ณ๐—ฒ ๐—ถ๐˜€ ๐—ฝ๐—ฒ๐—ฟ๐—ณ๐—ฒ๐—ฐ๐˜... ๐—ฒ๐˜ƒ๐—ฒ๐—ฟ. Itโ€™s safe to ask for help from friends/family who love you. There is no shame in asking for help during this challenging time.โฃ โžกOnly do whatโ€™s necessaryโฃ Now is the time to let someone else take over for a while. Take some time off from responsibilities that arenโ€™t vital to you or othersโ€™ survival. ๐—๐˜‚๐˜€๐˜ ๐—ณ๐—ผ๐—ฐ๐˜‚๐˜€ ๐—ผ๐—ป ๐˜๐—ผ๐—ฑ๐—ฎ๐˜† ๐—ฎ๐—ป๐—ฑ ๐˜„๐—ต๐—ฎ๐˜ ๐—บ๐—ถ๐—ป๐—ถ๐—บ๐—ฎ๐—น๐—น๐˜† ๐—ป๐—ฒ๐—ฒ๐—ฑ๐˜€ ๐˜๐—ผ ๐—ฏ๐—ฒ ๐—ฑ๐—ผ๐—ป๐—ฒ, ๐—ฎ๐—ป๐—ฑ ๐—ผ๐—ป๐—น๐˜† ๐˜๐—ต๐—ฎ๐˜. ๐—ฅ๐—ฒ๐—บ๐—ฒ๐—บ๐—ฏ๐—ฒ๐—ฟ, ๐˜†๐—ผ๐˜‚ ๐—ฎ๐—ฟ๐—ฒ๐—ป'๐˜ ๐—ฎ๐—น๐—ผ๐—ป๐—ฒโค
    Whoโ€™s with me and @fulcandles ?! โฃ I was a fun Whoโ€™s with me and @fulcandles ?! โฃ I was a fun auntie yesterday and got in my youngest nieceโ€™s birthday bounce house. ๐ŸฐSat there while she bounced with joy, and managed to crawl out. Clearly I feel like I ran a marathon today ๐Ÿ˜‚ โฃ โฃ So Iโ€™ll be lying on my heating pad in the a/c for the foreseeable future, just paying the MS tax. โฃ๐Ÿ’ฐ โฃ Worth it to see the smile on her face though, for sure ๐Ÿฅฐ โฃ โฃ What are you up to today?โฃ [img description: pic credit @fulcandles white background with black letterboard that reads โ€œlaying on a heating pad is my hot girl summerโ€ in white letters. Thereโ€™s a tan heating pad next to the letter board.] โฃ #thisisms #multiplesclerosis #chronicillness #spoonielife #autoimmune #chronicallyill #butyoudontlooksick #fatigue #disability #invisibleillness #chronicpain #auntielife #lovemyniece #funauntie #familyfun #makingmemories #findjoy #funnybecauseitstrue #hotgirlsummertime
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